Tag: Self-Advocating

Episode #108 | The ABA Debate with Self-Advocate John Lemus

Episode #108 | The ABA Debate with Self-Advocate John Lemus

In this episode our host, Holly is joined by Self-Advocate John Lemus. John is an experienced Outreach Coordinator and has worked extensively in the non-profit industry, specifically in disability relations. John is a strong community and social services professional and a 2015 Graduate of Leadership Spokane. We are excited to have him, and his friend/ally/advocate, Katrina Boik on our show today to discuss the highly debated topic of ABA Therapy.
Over the past few years stories of abusive practices in ABA therapies have gained attention on social media, and as a result, a percentage of the Self-Advocate community are now fierce opponents to this and other therapies/interventions used to aid in behavior modification in children with autism and related conditions. Admittedly our panel has fallen on different sides of this argument over years as they have deciphered through stories/articles, learned about the current delivery of therapy methods, and determined if their sources were based on fact or misinformation.
Listen in to hear the evolution of beliefs for John as a self-advocate; Katrina as an advocate and disabilities professional, and Holly as the parent to children on alternate sides of the spectrum as well as a disabilities professional.
References from John:
These two books are responsible for changing me from a bulldog advocate to a  more compassionate and empathic person who can see things from multiple viewpoints not just within my work but in life.
I think your wrong but I’m listening (a guide to Grace-Filled Political Conversations)
by Sarah Steward Holland and Beth Silvers
These amazing ladies also run https://www.pantsuitpoliticsshow.com/
I believe I mentioned 12 steps to a compassionate life
by Karen Armstrong.

One last book that I’ve been pushing is: Divergent mind thriving in a world that wasn’t designed for you

by Jenara Nerenbeg who is a female autistic author

(this book is currently $1.99 on iBooks)
A really great blog post from my amazingly incredible BFF Katrina Boik https://soarbehaviorwa.com/inclusive-language/
Lastly I’ve been sharing this video from Simon Sinek with some autistics that talks about stop championing blunt honesty. It talks about how to adapt  and how to still be honest without being an asshole https://fb.watch/7udTXgeBNU/
Episode 103 | Self Advocate: Sydney

Episode 103 | Self Advocate: Sydney

This week on ISAAC’S Autism in the Wild our host Holly is joined by Sydney. Sydney is a 27 year old self advocate that just relocated to Spokane from Alaska.  We cover it all in this episode: from her diagnosis as a child, to her career in Alaska, and now how she is settling in to life in Spokane. Sydney is an ambitious young woman with a strong sense of self and will be a great ambassador for self advocates in Spokane, we are happy to have met with her and look forward to collaborating with her again soon!

Episode 98 | My Life on the Autism Spectrum, Tracey Cohen

Episode 98 | My Life on the Autism Spectrum, Tracey Cohen

Today we are very excited to introduce our listeners to a truly inspirational self advocate, Tracey Cohen.  Tracey reached out to us to share her resources with the intent to educate and inspire individuals, families, professionals, and anyone willing to learn about Asperger syndrome/autism. She wants to share her story to prevent others from the hardships and pitfalls of her past. We asked her to be on our podcast and share her story and we are so glad to have made this connection. Listen in, and we are sure you will be just as captivated with her and her story as we are!

About Tracey:

There have been many misunderstandings in Tracey’s life. The most impactful misunderstanding was learning she was on the Autism Spectrum at the age of 39. A lifetime of feeling unheard and misunderstood suddenly had a name and a reason. Since her diagnosis Tracey has continued to study and learn about her diagnosis and how it influenced the choices that were made for her growing up.

Tracey currently helps facilitate a non-profit meetup group for adults on the spectrum, this group is based out of Michigan, however, all events are currently online so are available for anyone on the spectrum to take part in.

She has also written and published three books, all which can be purchased in print or audio/kindle.

Finally she is featured on the website: Growing Up Autistic where she shares her story, accolades, and links to her work.

To reach Tracey directly please email: tracey@growingupautistic.com

Episode 93 | Therapy Interventions, a self advocate’s take

Episode 93 | Therapy Interventions, a self advocate’s take

Welcome to another episode of ISAAC’s Autism in the Wild.  This week we are discussing therapy interventions.  While we have discussed many of these interventions at length in the past we have a unique viewpoint we would love to share.  Gillis Williams, aka “GW” is joining Holly again to discuss his view of the therapy interventions he received as a child. They discuss which interventions his family sought out and which were the most beneficial and enjoyable from his viewpoint.

 

Follow GW on social media at: Autism Chose Me, info@autismchoseme.com

autismchoseme.com

FB/Insta/Youtube/Twitter/TikTok @autismchoseme

Episode 91 | Self Advocate, GW of Autism Chose Me

Episode 91 | Self Advocate, GW of Autism Chose Me

Today we are joined by Gillis Williams or GW of “Autism Chose Me.”  GW is an incredible self- advocate for persons affected by autism spectrum disorder.  Listen in as we discuss the controversy between the “light it up blue” and “red instead” movements and discuss how both missions have impactful goals that are beneficial to the autism community.

About GW:

When I was five years old, I was diagnosed with autism. From grade school to high school issues I had included listening problems, struggles following directions in class, and repetitive behaviors such as flapping my hands and repeating random words or sentences. I also struggled making friends because kids in school didn’t understand my behaviors. Even my teachers, who tried to support me in all the ways they could, didn’t understand me either. However, with my supportive family at my side, we worked TOGETHER to get me help. They placed me in occupational and music therapies in grade school that assisted kids with disabilities, and also with hard work and dedication, I have become a successful speaker and entrepreneur, something that scientific research 15 years ago stated that hardly any autistic individual would have been able to accomplish. Most importantly, I have made friends along the way that understand me and support me. Without my family and friends for support, I would not have had any helpers throughout my life to “HELP” me overcome and accomplish! As the great Mr. Fred Rogers stated, “Look for the helpers. You will always find people who are helping.”

Social Media Advocates to look up:   @paigelayle   @reberrabon_bon @blackautisticking   @raincloud.heart   @resident_cryptid   @autistic.alex @evelyn.jeans   @lafilledani   @autienelle

Follow GW on social media at: Autism Chose Me, info@autismchoseme.com

autismchoseme.com

FB/Insta/Youtube/Twitter/TikTok @autismchoseme

Episode #64 | Autism & Friendship

Episode #64 | Autism & Friendship

This week we have a great panel of parents discussing the ins and outs of friendship as it relates to their kiddos with autism.  There is a common myth that children with autism generally do not crave the attention of peers and will not seek out friendship.  Although that may be true to some capacity for some of our children, it is most definitely not the case for all children with autism.  Many of our children still enjoy and seek meaningful friendship with their peers, it just may not always look the same as it does with our neurotypical children.

Listen in to hear us discuss the Friendship Algorithm which was brought to us through the TV sitcom “The Big Bang Theory.” Although this algorithm was written to be comical, it is actually a great tool to approach friendship and learning the boundaries and intent of your actions to make and maintain friends.

Finally we share stories of friendships gone well…and not so well, and how these particular parents handled these situations.

Episode #57 | Trusting Your Gut When Your Child Has No Words

Episode #57 | Trusting Your Gut When Your Child Has No Words

This week we talk about ways parents have trusted their gut instincts when it comes to understanding problems and  needs related to their child with special needs. You might think this only relates to families who have children who lack functional communication. This isn’t the case. This week you will learn from my guests that even when your child is highly verbal, parents must still trust their gut when it comes to many different situations involving their special needs child and their ability to adequately self-advocate for themselves.

Episode #54 | Executive Function: A Life of My Own

Episode #54 | Executive Function: A Life of My Own

In this podcast, executive function extraordinaire, Becky Gardner, joins us to talk about the challenges that executive function deficits can pose for our children; and I don’t just mean our kids with autism. If you have felt concern about any of your kids’ ability to focus, initiate tasks, plan and prioritize tasks, manage time, define and achieve goals, then you DEFINITELY need to listen to this podcast.  Executive function challenges affects just as many neuro-typical kids as those with special needs.

Becky shares about her professional background as an Occupational Therapist and how this lead her down the road to becoming an executive function coach.

Interested in learning more about Executive Function and how Becky can help your child use their strengths to over come their challenging areas of executive function?

Becky Gardner comes to A Life of my Own with a holistic, collaborative approach created from a unique and varied background.

  • With a Master’s Degree in Occupational Therapy, which has its roots in purposeful, meaningful work to increase independence in Activities of Daily Living (ADLs), she brings a student-focus and student-driven approach to this work.

  • Having a deep Social justice / Neurodiversity core belief system brings a focus of self-determination and self-advocacy. This was further developed during work at Bellevue College’s Disability Resource Center, determining individualized college accommodations for students with disabilities so that they may have equal access to course materials.

  • Operating from a strengths-based educational model brings emphasis in student empowerment and nurturing their belief in their own self-efficacy. This was developed / enhanced while working with Sara Gardner (no relation, autistic creator of the current Neurodiversity Navigators program), and from working in and around the Autism Spectrum Navigators program at Bellevue College since its conception, Becky was the adjunct faculty for the Executive Functioning course, and co-taught other courses including Self-Advocacy.

  • Having experience working through her own disability / executive functioning deficits, and having two neurodiverse adult children, brings an understanding of the day-to-day events and efforts that go with these experiences.

  • Working with college, high school, and middle school students at varying stages on the continuum of independence, brings rich and varied experience to this work.

A Life of my Own is the natural culmination of this prior work and life experience.

Becky is excited to offer her skills and experience to a wider group of young adults to improve their understanding of what ”adulting” / independent living looks like, and to assist with increasing abilities in necessary areas leading to independence – and their feeling of A Life of my Own.

A Life of My Own

 

 

Episode #42 | Favorite School Accommodations

Episode #42 | Favorite School Accommodations

On this episode, a group of parents joined me to talk about their favorite school accommodations and how they have helped their children over the years. The reality is that your favorite school accommodation is what works best for your particular child and this looks different person to person. However, I find that if you don’t know what options are available, it’s hard to know what to advocate to have in place for the best IEP or 504 for your kiddo.

A list of known school accommodations can be found on our website at: https://theisaacfoundation.configio.com/ShoppingCart.aspx?com=detailview&iid=478

Episode #7 | Sharing the Autism Diagnosis

Episode #7 | Sharing the Autism Diagnosis

A fantastic group of parents joined me for this emotional podcast on sharing the autism diagnosis.  This is one of my favorite episodes as we conversed on a variety of aspects of sharing the autism diagnosis. Here’s some of what you’ll hear this week:

  • Heartwarming stories of acceptance and understanding when parents have shared their child’s diagnosis.
  • Why sharing the diagnosis is easier today.
  • Misunderstandings and unforeseen consequences of not sharing the diagnosis.
  • Sharing from a dad’s perspective.
  • Why parents hesitate to share.
  • When it becomes your child’s choice whether to share this information.
  • Conversation around the difference between a diagnosis and a label.