Tag: special needs family

Episode 97 | Launching Adult Children

Episode 97 | Launching Adult Children

In this episode we are joined by two moms that both have young-adult children that are preparing to launch towards independence. Phara has a 23 year year old son and is currently preparing for their second-attempt at launching her son into independent living. Gerriann has an 18 year old son who is just graduating high school and will be continuing in the school system through a transition program.

We discuss with each parent the issues they are facing, the barriers to employment/living situations they are encountering, and the programs they have been utilizing to make positive progress. We also have a conversation about the needs of the parents and the importance of finding a support network and planning for the future.

If you have questions for any of our guests, please feel free to email us at hello@theisaacfoundation.org and we would be happy to get you in contact with them!

Episode 96 | Creative Ways to Administer Meds

Episode 96 | Creative Ways to Administer Meds

Do you have a child that just hates taking their medication? Then this is the episode for you!  We are joined by Amanda Hansen, a local special needs mom and friend to the ISAAC Foundation, to discuss the creative avenues she has found to administer medication to her son Trevin.  Listen in to learn some of the tricks she and Holly have learned over the years and laugh along with these mom’s as they discuss the trials that did not end so well.

Episode 94 | Sabita Finds Her Voice: Advocacy for the nonverbal

Episode 94 | Sabita Finds Her Voice: Advocacy for the nonverbal

This week on ISAAC’S Autism in the Wild podcast Holly is joined by an amazing mother, entrepreneur, and advocate for the nonverbal community, Dr Stephanie Vavilala.  We were honored to zoom chat with Dr Stephanie about the amazing facility she is opening as well as the services she is currently offering in St. Augustine Florida through her LMH practice Therapeutic Expressions and her nonprofit organization Sabita Speaks. Listen in as we discuss important programs that have been created to fill the many gaps in special needs care across the country and the release of Dr. Stephanie’s book, Sabita Finds Her Voice which serves as a flagship for educating the youth about AAC Speech Devices and how they can better bridge the gap between the verbal and non-verbal populations.
Dr. Stephanie Vavilala, Ed.D, LMHC, BCBA, RPT-S is the CEO and founder of Therapeutic Expressions and Awetism Wonderland (an autism therapy center), as well as the author of the children’s book Sabita Finds Her Voice. She is the mother of a daughter who has autism and is non verbal, Sabita. Stephanie’s daughter inspired her to become a leader in the space of special needs. Her therapeutic style is holistic, empowering, and action-oriented. She and her daughter reside in St. Augustine, Florida.
Episode 92 | Don’t Sweat the Small Stuff

Episode 92 | Don’t Sweat the Small Stuff

This week on ISAAC’s Autism in the Wild, Holly is joined by three special needs parents and they are discussing the fights that just aren’t worth fighting. These are the tasks that at one point in their life were worth an argument, but now in hindsight, were not worth the time/energy invested.  We discuss topics like wearing appropriate footwear, screen-time, and dinner table etiquette.

Huge thanks to our new podcast voice, Nicole, who shared a gem of wisdom with us “Don’t accept criticism from someone you wouldn’t ask for advice” this sentiment was a great voice of reason while discussing the constant criticisms special needs parent’s tend to find themself surrounded by.

Episode 86 | Birthday Parties During A Pandemic

Episode 86 | Birthday Parties During A Pandemic

It has officially been one year since Covid-19 restrictions have been part of our lives.  This means every single person has experienced a “Lockdown Birthday Party.”

Today our panel of special-needs parents are discussing hosting birthday parties when the traditional idea of a party is not allowed. What did they do for their kiddos on their special day?  What do they wish they had done? What has the pandemic forced us to learn about the traditional idea of a party?

Episode 85 | Building and Maintaining Self Esteem

Episode 85 | Building and Maintaining Self Esteem

We know that on the whole, our children on the spectrum receive many more corrections each day than a nuero-typical child. In a world of “don’t do that” and “it is better if you do it this way” it is hard to achieve a high sense of self esteem and maintain confidence in yourself.  We have discussed building self esteem in passing while recording other episodes but wanted a chance to discuss this topic as a whole.  So, we invited a panel of parents that discuss the challenges their children-on all ends of the spectrum have faced regarding growing and maintaining self esteem.

Episode 82 | Indoor Activities

Episode 82 | Indoor Activities

In today’s episode we talk about ways to keep your children entertained when the weather just doesn’t allow you to go outside.  During the covid-19 lockdown we are all stuck inside, alone, and our kids are starting to climb the walls!  How are you keeping your kids busy and entertained when the outside world is closed?  We discuss this with several of our autism parents and discuss different activities that have been successful in our homes. Toward the end of the program we also dip into outdoor winter activities and found that most of the resistance to outdoor fun–actually comes from ourselves as parents. Listen in and see if you agree!

Laser Tag: (several variations available online, this is the one that we purchased) https://www.amazon.com/gp/product/B07ZPGM6NQ/ref=ppx_yo_dt_b_asin_image_o02_s00?ie=UTF8&psc=1

 

Episode 81 | Autism & Mealtime

Episode 81 | Autism & Mealtime

Full Disclosure, this episode originally started out as a “recipe share” program. Our goal was to find those perfect gems in the culinary world that are nutritious and every member in the family will happily eat and enjoy. In recording this episode, we realized that this is basically NEVER the case. We had this discussion with several of our autism parents and between the 5 parents, all of our ideas were “no-go” items in one or more of each other’s households.

What did we learn from this epic fail?  We learned that we are all very similar in different ways, and all share the same struggle of cooking for picky eaters. Listen in as we desperately try to find ONE food that all of our kids will eat, as I have already given away–we don’t find it (unless ketchup and cereal counts as a meal), but we have an exceptionally entertaining conversation as we tried to get there! And as an added bonus, this was recorded within earshot of Caleb, Holly’s son, who made several cameos in the episode with his delightful interjections. Enjoy!

Episode 80 | Receptive, Expressive, and Body Language

Episode 80 | Receptive, Expressive, and Body Language

On todays episode of ISAAC’S Autism in the Wild Podcast we are joined again by Alecia Weeks of Niche Therapy.  She is the current speech therapist for Holly’s son Caleb.  Alecia brings a wealth of knowledge to the table as we discuss Receptive, Expressive, and Body language and what barriers may be keeping your child from reaching their communication goals.  We discuss the semantics of language disorders, and how therapy can benefit your child and help them to reach those communication goals.
Resources:
  • Here is a link to the social thinking website. It is a great resource for providers and parents for helping build pragmatics. https://www.socialthinking.com/
  • Duffy, J. R. (2013). Motor speech disorders: Substrates, differential diagnosis, and management. St. Louis, MO: Elsevier.
  • The Out of Sync Child: available anywhere books are sold: AMAZON LINK
About Alecia with Niche Therapy:
Insta@ nichetherapyllc 
Episode 79 | Self Care During a Pandemic

Episode 79 | Self Care During a Pandemic

This week ISAAC’S Autism in the Wild checks in with a few parents to see how they are keeping sane during these insane times.  We are now over 9 months into the COVID-19 pandemic and discuss how our own self care looks as we have settled into the new normal.  We discuss alone time, sleep, hobbies, social media and more. We also explore how our thoughts on self care have changed as we’ve adjusted to the decline in social interaction.