Episode 91- Self Advocate, GW of Autism Chose Me

Episode 91- Self Advocate, GW of Autism Chose Me

Today we are joined by Gillis Williams or GW of “Autism Chose Me.”  GW is an incredible self- advocate for persons affected by autism spectrum disorder.  Listen in as we discuss the controversy between the “light it up blue” and “red instead” movements and discuss how both missions have impactful goals that are beneficial to the autism community.

About GW:

When I was five years old, I was diagnosed with autism. From grade school to high school issues I had included listening problems, struggles following directions in class, and repetitive behaviors such as flapping my hands and repeating random words or sentences. I also struggled making friends because kids in school didn’t understand my behaviors. Even my teachers, who tried to support me in all the ways they could, didn’t understand me either. However, with my supportive family at my side, we worked TOGETHER to get me help. They placed me in occupational and music therapies in grade school that assisted kids with disabilities, and also with hard work and dedication, I have become a successful speaker and entrepreneur, something that scientific research 15 years ago stated that hardly any autistic individual would have been able to accomplish. Most importantly, I have made friends along the way that understand me and support me. Without my family and friends for support, I would not have had any helpers throughout my life to “HELP” me overcome and accomplish! As the great Mr. Fred Rogers stated, “Look for the helpers. You will always find people who are helping.”

Social Media Advocates to look up:   @paigelayle   @reberrabon_bon @blackautisticking   @raincloud.heart   @resident_cryptid   @autistic.alex @evelyn.jeans   @lafilledani   @autienelle

Episode 90 | Dirty Looks in Public Revisited

Episode 90 | Dirty Looks in Public Revisited

One of our most downloaded episodes of ISAAC’s Autism in the Wild has been our “Dirty Looks in Public” recording.  It seems that no matter where you are in your autism journey, you have a story to share about that time you were in public and felt the shaming glances from strangers, judging you and your parenting abilities.  It is inevitable, and it is one of the worst experiences as a special needs parent. Today we are joined by a new panel of parents and talking about all of those cringey moments, how we dealt with them in the moment and how we would like other’s to respond when we are in a moment of meltdown at Target.

Episode 89 | Motivation

Episode 89 | Motivation

In this episode of ISAAC’s Autism in the Wild, we are joined again by Becky Gardner, Executive Function Coach at: A Life of My Own to discuss motivation.  Finding and maintaining motivation is a tricky task in a nuerotypical brain–so for our loved ones on the autism spectrum we have to really dial in to determine which means of motivation will be successful.  It is a process and can be discouraging, however the benefits to finding a sustainable intrinsic motivation can be life changing.

References:

Self-Determination Theory of Motivation: Why Intrinsic Motivation Matters

Courtney E. Ackerman, MA., 2-15-2021 (Synopsis of Ryan and Deci’s work on Self-Determination Theory and Intrinsic Motivation)

https://positivepsychology.com/self-determination-theory/#:~:text=It%20posits%20that%20there%20are,in%20the%201970s%20and%201980s.

 

Drive. By Daniel Pink (book)

Key Concepts-

– Autonomy: “Control leads to compliance; autonomy leads to engagement.” Control is by others, from outside (extrinsic motivators) – in some situations this leads to compliance but does not lead to desire. Autonomy is from within (intrinsic) – by definition it leads to a true desire to engage with the activity.

– Mastery: “One source of frustration … is the frequent mismatch between what people must do and what people can do. When what they must do exceeds their capabilities, the result is anxiety. When what they must do falls short of their capabilities, the result is boredom. But when the match is just right, the results can be glorious.”

– Purpose: “Human beings have an innate inner drive to be autonomous, self‐determined, and connected to one another. And when that drive is liberated, people achieve more and live richer lives.”

 

TED Talk: “The Puzzle of Motivation” By Dan Pink

Although used in a different context, the science is valid and the research applies.

https://youtu.be/rrkrvAUbU9Y

 

Executive Functioning  –

Smarts: Are We Hardwired for Success? (Book) by Chuck Martin , Peg Dawson, Richard Guare

Smart but Scattered: The Revolutionary “Executive Skills” Approach to Helping Kids Reach Their Potential (Book) by Peg Dawson and Richard Guare

 

Collaborative Problem Solving –

> Rethinking Challenging Kids: Where There’s a Skill There’s a Way, Stuart Ablon https://youtu.be/wgNpGThLl2U

Changeable: How Collaborative Problem Solving Changes Lives at Home, at School, and at Work (Book) by J. Stuart Ablon

Episode 88 | Things we wish everyone knew about autism

Episode 88 | Things we wish everyone knew about autism

In this episode of ISAAC’S Autism in the Wild we discuss thing’s we wish EVERYONE knew about autism. In our day-to-day as autism parents we are frequently coming in contact with people that just don’t understand our children. Often times a stranger will witness our child’s moment of anxiety-driven meltdown and make the assumption that the child is simply choosing to misbehave. On the flip side, a person may meet a child with high functioning autism and ask “What is his/her special talent?”  No matter how well intentioned there is a true lack of understanding regarding autism that directly impacts societies view on their abilities.  Listen in as we discuss the main issues these moms wish everyone understood about autism.

Reference:

Beyond Behaviors by Monda Delahooke, Phd

Episode 87 | Fidget Spinners-Useful or Distracting?

Episode 87 | Fidget Spinners-Useful or Distracting?

On today’s episode of ISAAC’s Autism in the Wild we discuss fidget spinners with a panel of autism moms.  Even though we all agree certain fidgets can be very annoying we see the value in them.  We discuss the different types of fidgets, how they use them effectively, utilizing them in and out of school and more.

Episode 86 | Birthday Parties During A Pandemic

Episode 86 | Birthday Parties During A Pandemic

It has officially been one year since Covid-19 restrictions have been part of our lives.  This means every single person has experienced a “Lockdown Birthday Party.”

Today our panel of special-needs parents are discussing hosting birthday parties when the traditional idea of a party is not allowed. What did they do for their kiddos on their special day?  What do they wish they had done? What has the pandemic forced us to learn about the traditional idea of a party?

Episode 85 | Building and Maintaining Self Esteem

Episode 85 | Building and Maintaining Self Esteem

We know that on the whole, our children on the spectrum receive many more corrections each day than a nuero-typical child. In a world of “don’t do that” and “it is better if you do it this way” it is hard to achieve a high sense of self esteem and maintain confidence in yourself.  We have discussed building self esteem in passing while recording other episodes but wanted a chance to discuss this topic as a whole.  So, we invited a panel of parents that discuss the challenges their children-on all ends of the spectrum have faced regarding growing and maintaining self esteem.

Episode 84 | The Covid-19 Vaccine

Episode 84 | The Covid-19 Vaccine

The Covid vaccine is becoming more and more available.  When it becomes available to our kiddos with autism will you be first in line-or not interested?

This is the question we posed to a group of parents in this episode of ISAAC’s Autism in the Wild. Listen in to hear the factors these parents are considering while deciding if they will vaccinate their children against Covid-19.

**Note to listener: during this episode a parent needs to leave to tend to a child with an injury. Rest assured the injury was very minor, the child received mom’s TLC & snuggles and has fully recovered!

Episode 83 | Choosing A Therapy Provider

Episode 83 | Choosing A Therapy Provider

In this episode of ISAAC’s Autism in the Wild we discuss choosing a therapy provider.  Generally therapy providers are on a long waitlist and you take what you can get.  With Covid-19 shaking up schedules we have a rare opportunity to access providers and appointments that were not previously available. With this new opportunity comes its own challenges.  How do you choose between several therapy clinic options? We are joined by two autism moms with different therapy needs and backgrounds who discuss the path they took to formulate their child’s therapy schedule.

References:

Previous Podcast: Episode#66 Navigating Wait Lists

Episode 82 | Indoor Activities

Episode 82 | Indoor Activities

In today’s episode we talk about ways to keep your children entertained when the weather just doesn’t allow you to go outside.  During the covid-19 lockdown we are all stuck inside, alone, and our kids are starting to climb the walls!  How are you keeping your kids busy and entertained when the outside world is closed?  We discuss this with several of our autism parents and discuss different activities that have been successful in our homes. Toward the end of the program we also dip into outdoor winter activities and found that most of the resistance to outdoor fun–actually comes from ourselves as parents. Listen in and see if you agree!

Laser Tag: (several variations available online, this is the one that we purchased) https://www.amazon.com/gp/product/B07ZPGM6NQ/ref=ppx_yo_dt_b_asin_image_o02_s00?ie=UTF8&psc=1