Category: Executive Functioning

#119 | Sibling Independence with guest Maria Jennings

#119 | Sibling Independence with guest Maria Jennings

On this week’s episode, Maria Jennings joins me to discuss the dynamic that having a child with a disability has made on our neurotypical children and how we have each noticed a higher level of independence and self-advocacy skills.

Show resources

Holly shares her experience using combination door knobs in her home which increases safety and provides a means for neurotypical siblings to have their own secure space. https://www.amazon.com/Signstek-Keyless-Digital-Electronic-Security/dp/B00KS3JC30?pd_rd_w=c3bUq&pf_rd_p=07da9b2f-52f3-4fa6-b605-4458a1e54cf1&pf_rd_r=6R7D68GAYSBMFW69TFMK&pd_rd_r=6e8a228e-37d3-478b-833f-4e7d1cf0cd97&pd_rd_wg=7uwUR&pd_rd_i=B00KS3JC30&psc=1&ref_=pd_bap_d_rp_36_i

Holly also explains the benefit of registering an ISAAC Alert (911 dispatch note linked to your home address) if you have locking interior doors and window at your home: https://theisaacfoundation.configio.com/page/programsisaacalert

Families who are interested in accessing ISAAC Foundation’s Sibling Spotlight program can find the registration link here: https://theisaacfoundation.configio.com/page/siblingspotlight

#113 Self-Advocate RoundTable–LIVE!

#113 Self-Advocate RoundTable–LIVE!

On this very special episode of ISAAC’S Autism in the Wild Podcast we are joined by two of our favorite self-advocates, Tracey Cohen & John Lemus.  Tracey is an author of three books, two about autism and one about her passion for running.  We had featured Tracey in an episode earlier this year and were so excited to meet her in person when she came to Spokane to visit at the end of the summer.  While Tracey was visiting we introduced her to John Lemus, a Spokane based disabilities professional who advocates for the disability community through his various positions in local and state leadership.

Please take a listen and excuse the background noise as we are recording LIVE on the stage at Pitotti Coffee  as we discuss several topics regarding advocacy.

References:

Full Spectrum Agency for Autistic Adults
Author, Autism Advocate
Episode #108 | The ABA Debate with Self-Advocate John Lemus

Episode #108 | The ABA Debate with Self-Advocate John Lemus

In this episode our host, Holly is joined by Self-Advocate John Lemus. John is an experienced Outreach Coordinator and has worked extensively in the non-profit industry, specifically in disability relations. John is a strong community and social services professional and a 2015 Graduate of Leadership Spokane. We are excited to have him, and his friend/ally/advocate, Katrina Boik on our show today to discuss the highly debated topic of ABA Therapy.
Over the past few years stories of abusive practices in ABA therapies have gained attention on social media, and as a result, a percentage of the Self-Advocate community are now fierce opponents to this and other therapies/interventions used to aid in behavior modification in children with autism and related conditions. Admittedly our panel has fallen on different sides of this argument over years as they have deciphered through stories/articles, learned about the current delivery of therapy methods, and determined if their sources were based on fact or misinformation.
Listen in to hear the evolution of beliefs for John as a self-advocate; Katrina as an advocate and disabilities professional, and Holly as the parent to children on alternate sides of the spectrum as well as a disabilities professional.
References from John:
These two books are responsible for changing me from a bulldog advocate to a  more compassionate and empathic person who can see things from multiple viewpoints not just within my work but in life.
I think your wrong but I’m listening (a guide to Grace-Filled Political Conversations)
by Sarah Steward Holland and Beth Silvers
These amazing ladies also run https://www.pantsuitpoliticsshow.com/
I believe I mentioned 12 steps to a compassionate life
by Karen Armstrong.

One last book that I’ve been pushing is: Divergent mind thriving in a world that wasn’t designed for you

by Jenara Nerenbeg who is a female autistic author

(this book is currently $1.99 on iBooks)
A really great blog post from my amazingly incredible BFF Katrina Boik https://soarbehaviorwa.com/inclusive-language/
Lastly I’ve been sharing this video from Simon Sinek with some autistics that talks about stop championing blunt honesty. It talks about how to adapt  and how to still be honest without being an asshole https://fb.watch/7udTXgeBNU/
Episode #105 | Executive Function Q&A with Becky Gardner

Episode #105 | Executive Function Q&A with Becky Gardner

In this episode of ISAAC’S Autism in the Wild we are joined again by our friend Becky Gardner of “A Life of My Own” Executive Function Coaching. Several parents have also joined us to ask her questions about executive function as it relates to their own children.  Listen in and learn along with our parents, some strategies to help launch our children successfully!

Episode 99 | Lack of Motivation

Episode 99 | Lack of Motivation

This week we are joined again by Becky Gardner, Executive Function Coach at A Life of My Own. We previously discussed finding and maintaining motivation for your loved ones with autism or other special needs (See Episode 89-Motivation)to help them set and achieve goals.  In this episode we take the conversation a bit deeper and discuss the reasons they may be getting stuck and how that is not a reflection of their motivation, and more so a manifestation of their frustration. Listen in to learn strategies for determining what is holding them back from making progress and how to get “un-stuck”

References:

Episode 97 | Launching Adult Children

Episode 97 | Launching Adult Children

In this episode we are joined by two moms that both have young-adult children that are preparing to launch towards independence. Phara has a 23 year year old son and is currently preparing for their second-attempt at launching her son into independent living. Gerriann has an 18 year old son who is just graduating high school and will be continuing in the school system through a transition program.

We discuss with each parent the issues they are facing, the barriers to employment/living situations they are encountering, and the programs they have been utilizing to make positive progress. We also have a conversation about the needs of the parents and the importance of finding a support network and planning for the future.

If you have questions for any of our guests, please feel free to email us at hello@theisaacfoundation.org and we would be happy to get you in contact with them!

Episode 89 | Motivation

Episode 89 | Motivation

In this episode of ISAAC’s Autism in the Wild, we are joined again by Becky Gardner, Executive Function Coach at: A Life of My Own to discuss motivation.  Finding and maintaining motivation is a tricky task in a nuerotypical brain–so for our loved ones on the autism spectrum we have to really dial in to determine which means of motivation will be successful.  It is a process and can be discouraging, however the benefits to finding a sustainable intrinsic motivation can be life changing.

References:

Self-Determination Theory of Motivation: Why Intrinsic Motivation Matters

Courtney E. Ackerman, MA., 2-15-2021 (Synopsis of Ryan and Deci’s work on Self-Determination Theory and Intrinsic Motivation)

https://positivepsychology.com/self-determination-theory/#:~:text=It%20posits%20that%20there%20are,in%20the%201970s%20and%201980s.

 

Drive. By Daniel Pink (book)

Key Concepts-

– Autonomy: “Control leads to compliance; autonomy leads to engagement.” Control is by others, from outside (extrinsic motivators) – in some situations this leads to compliance but does not lead to desire. Autonomy is from within (intrinsic) – by definition it leads to a true desire to engage with the activity.

– Mastery: “One source of frustration … is the frequent mismatch between what people must do and what people can do. When what they must do exceeds their capabilities, the result is anxiety. When what they must do falls short of their capabilities, the result is boredom. But when the match is just right, the results can be glorious.”

– Purpose: “Human beings have an innate inner drive to be autonomous, self‐determined, and connected to one another. And when that drive is liberated, people achieve more and live richer lives.”

 

TED Talk: “The Puzzle of Motivation” By Dan Pink

Although used in a different context, the science is valid and the research applies.

https://youtu.be/rrkrvAUbU9Y

 

Executive Functioning  –

Smarts: Are We Hardwired for Success? (Book) by Chuck Martin , Peg Dawson, Richard Guare

Smart but Scattered: The Revolutionary “Executive Skills” Approach to Helping Kids Reach Their Potential (Book) by Peg Dawson and Richard Guare

 

Collaborative Problem Solving –

> Rethinking Challenging Kids: Where There’s a Skill There’s a Way, Stuart Ablon https://youtu.be/wgNpGThLl2U

Changeable: How Collaborative Problem Solving Changes Lives at Home, at School, and at Work (Book) by J. Stuart Ablon

Episode 76 | Masking & Bullying

Episode 76 | Masking & Bullying

On today’s episode we talk with executive function coach Becky Garder of “A Life of My Own.” We discuss the common defense mechanism many people (including the autistic population) use to “fit in,” known as masking.  Or the idea that if you change or “mask” your identity in order to fit in with those around you. Masking can make social interactions less painful/tense. Although this method can seem to help in short periods of time, the long term affects are disastrous to self esteem.  Today we discuss with Becky, what masking is, what it looks like, and how to redirect to avoid burnout.

References:

Blog describing Autistic Burnout that was read part of in the podcast:
Autistic Exhaustion”
by Rhi (July, 17, 2019)
All posts found here: https://autistrhi.com/
This article showcases how autism can be seen through another, strengths-based/neurodiversity, lens

Uniquely Human (A Different Way of Seeing Autism) – July 1, 2016

by Barry M. Prizant

https://www.amazon.com/Uniquely-Human-Different-Seeing-Autism/dp/1476776245/ref=sr_1_1?dchild=1&keywords=uniquely+human&qid=1607632922&sr=8-1

And, btw, this book is a great Xmas gift for people!! Just saying…..😏

Episode #72 | Speech & Feeding Therapy Part 2

Episode #72 | Speech & Feeding Therapy Part 2

This is Part 2 of our conversation with Alecia, a speech language pathologist with Niche Therapy in Spokane WA, and Camille, a SLP with KidsCare Home Health in Colorado about speech and feeding therapy.  We discuss what they do, how they do it, and why it may be a good therapy modality for your child with autism or other special needs.  In this section of the conversation we delve into medical coverage for these services, so make sure you have listened to part one and then jump back in!
 
About Alecia with Niche Therapy:
nichetherapyllc on instagram

About Camille with KidsCare Home Health Therapy:

Camille Farris M.S. CCC-SLP, based in Denver, Colorado

Pediatric Speech Language Pathologist with KidsCare Home Health specializing in speech, language, and feeding therapy

KidsCare has operations in Texas, Colorado, Idaho, and Oregon

 

References:

Employment Settings for SLPs. (n.d.). Retrieved November 13, 2020, from https://www.asha.org/students/employment-settings-for-slps

Gleason, J. B., & Bernstein, N. E. (2013). The development of language. Boston,, MA: Pearson.

Grandbios, Kate & Wonkka, Amy, host Callahan, Tracey guest. “Feeding and Swallowing in Schools: Foundational Knowledge.” SLP  Nerdcast, SLP Nerdcast 20, April 2020 https://www.slpnerdcast.com/episodes/feeding-and-swallowing-in-schools
 
Scope of Practice in Speech-Language Pathology. (1970, January 01). Retrieved November 13, 2020, from https://www.asha.org/policy/sp2016-00343/
 
Shaywitz, S. E., & Shaywitz, J. (2020). Overcoming dyslexia. New York, NY: Alfred A. Knopf.
 
Speech-Language Pathology Pathway to Certification. (n.d.). Retrieved November 13, 2020, from https://www.asha.org/Certification/Speech-Language-Pathology-Pathway-To-Certification/
Episode #70 | Unexpected Wins in Virtual Learning

Episode #70 | Unexpected Wins in Virtual Learning

In this COVID-19 world we live in we are forced to accept a lot of “new-normals.” One of the challenges that affects a lot of our families is online schooling.  Online school has been tough for a lot of us, but despite the issues we are looking to discuss hidden little gems of wisdom we have learned over the past few months.  Hidden inside the uprooted schedules, changes in scenery, and endless questions presented to the parents who are now teacher aides…we have found MANY unexpected “WINNING” moments.  Listen in as Holly, of the ISAAC Foundation, discusses these bright points with a few parents of children with special needs.

 

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