Category: Community

#128 | Self-Advocate Laine Anderson: Williams Syndrome Acceptance Month

#128 | Self-Advocate Laine Anderson: Williams Syndrome Acceptance Month

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May is Williams Syndrome Acceptance Month. Joining me for this episode of Isaac’s Autism in the Wild podcast is self-advocate Laine Anderson who shares with me her journey as a young woman living with Williams Syndrome. We chatted about her early years along with some of the medical  challenges associated with Williams Syndrome.

Show Notes:

https://williams-syndrome.org/

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#125 | Isaac’s Clubhouse Banter

#125 | Isaac’s Clubhouse Banter

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What is Isaac’s Clubhouse? It’s a safe place for children on the autism spectrum to congregate, explore interests, and make connections with peers in their community. In this episode, members of our Tuesday after school Clubhouse crew join me for their first ever podcast experience. You’ll have to forgive the excessive background noise as the kids learn how to have less fidgets and quiet hands.

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#118 | Lilac Learning Center | Non Public Agency School for Students with ASD

#118 | Lilac Learning Center | Non Public Agency School for Students with ASD

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In this episode Holly connects with the owner of Lilac City Behavioral Services to learn about their new school, Lilac Learning Center, which opened this past October. Lilac Learning Center is a non public agency option that is a good fit for students ages 14 to 21 who require a high level of support that is not able to be met by the student’s home district. Listen in to find out if Lilac Learning Center might be a good fit for your loved one touched by autism.

Resources from this podcast

Lilac Learning Center

Current Nonpublic Agencies

Public schools are required to provide a free appropriate public education (FAPE) to students with disabilities ages 3-21 who are eligible for special education. If a student’s special education needs cannot be met by their resident district, the district may contract with an approved NonPublic Agency (NPA). The NPA provides the student’s special education and related services that are determined through the Individualized Education Program (IEP) process.

 

Washington Administrative Code related to Non Public Agencies

https://apps.leg.wa.gov/WAC/default.aspx?cite=392-172A-04090

 

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#116 | Self-Advocate John Lemus

#116 | Self-Advocate John Lemus

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In this episode, Holly sits with well known Spokane self-advocate, John Lemus to learn more about his childhood, teen years, and adult life on the autism spectrum. He shares about profound lessons he has learned, and even opens up about his experiences dating.

References within podcast:

Anger Management at Fulcrum Institute: www.fulcrumdispute.com/angermanagement.jsp

Dating Apps to consider:

Hinge

Hiki for individuals on the autism spectrum

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#115 | The Arc of Spokane

#115 | The Arc of Spokane

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In this episode of ISAAC’S Autism in the Wild Holly is joined by the Executive Director of the Arc of Spokane, Sima Thorpe. Sima is here to tell us all about The Arc of Spokane and introduces us to two of her most recent hires, Jennifer and Maria. Together this group discusses the different programs available to families in our area and how we plan to work together to help meet the needs of the developmentally disabled populations in Spokane and extending into our rural areas.

The Arc of Spokane:

Questions on resources and services:

advocacy@arc-spokane.org

 

For Spokane Parent to Parent Resources:

Maria Jennings

mjennings@arc-spokane.org

509-789-8797

Facebook:  Parent to Parent of Spokane County | Facebook

 

For Pend Orielle and Stevens County Parent to Parent Resources:

Micaela Herman

mherman@arc-spokane.org

509-789-8782

Parent to Parent of Stevens and Pend Oreille Counties | Facebook

 

Sexual Abuse Prevention Training

Jim Lane

jlane@arc-spokane.org

509-789-8325

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#114 Self-Advocate & Son, Caleb

#114 Self-Advocate & Son, Caleb

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In this special episode of ISAAC’S Autism in the Wild, Holly is joined by her very own son, Caleb. Caleb is 13 years old and was diagnosed with autism when he was very young, in fact during this episode he reveals that he does not remember a time when he was not in therapy. Listen is as Holly discusses with Caleb; what autism means to him, what he notices in his day to day life as a child with autism, his likes/dislikes and specifically where some of them stem from, and so much more!

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#113 Self-Advocate RoundTable–LIVE!

#113 Self-Advocate RoundTable–LIVE!

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On this very special episode of ISAAC’S Autism in the Wild Podcast we are joined by two of our favorite self-advocates, Tracey Cohen & John Lemus.  Tracey is an author of three books, two about autism and one about her passion for running.  We had featured Tracey in an episode earlier this year and were so excited to meet her in person when she came to Spokane to visit at the end of the summer.  While Tracey was visiting we introduced her to John Lemus, a Spokane based disabilities professional who advocates for the disability community through his various positions in local and state leadership.

Please take a listen and excuse the background noise as we are recording LIVE on the stage at Pitotti Coffee  as we discuss several topics regarding advocacy.

References:

Full Spectrum Agency for Autistic Adults
Author, Autism Advocate

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Episode #111 Soar Behavioral

Episode #111 Soar Behavioral

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In this episode of ISAAC’S Autism in the Wild Podcast Holly was joined by Jim Matthews, Executive Director of SOAR Behavior Services. SOAR is a prominent ABA provider in Spokane with locations across the state of Washington, in Idaho, and Nevada.  We discuss how SOAR was founded and the services they provide. We also delve into issues concerning wait lists, staff turnover, and the politics involved in home vs school ABA settings.

About Jim Matthews

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Jim Matthews holds four Bachelor’s degrees from the University of California, Irvine and two Masters degrees in Educational Psychology and School Psychology from Loyola Marymount University in Los Angeles, CA. Jim is also a Board Certified Behavior Analyst (BCBA) and Nationally Certified School Psychologist (NCSP). Throughout his two decades of working in ABA, he has worked with thousands of children and families both in schools and in private practice. Jim lives in Spokane WA. Professionally, Jim has dedicated his life to helping all people with disabilities. He is deeply passionate about helping people who are most in need during the time when they most need it. He feels strongly that ABA can confer meaningful lifelong skills that both enrich and enhance the quality of life for individuals with disabilities.

 

 

 

 

 

 

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Episode #108 | The ABA Debate with Self-Advocate John Lemus

Episode #108 | The ABA Debate with Self-Advocate John Lemus

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In this episode our host, Holly is joined by Self-Advocate John Lemus. John is an experienced Outreach Coordinator and has worked extensively in the non-profit industry, specifically in disability relations. John is a strong community and social services professional and a 2015 Graduate of Leadership Spokane. We are excited to have him, and his friend/ally/advocate, Katrina Boik on our show today to discuss the highly debated topic of ABA Therapy.
Over the past few years stories of abusive practices in ABA therapies have gained attention on social media, and as a result, a percentage of the Self-Advocate community are now fierce opponents to this and other therapies/interventions used to aid in behavior modification in children with autism and related conditions. Admittedly our panel has fallen on different sides of this argument over years as they have deciphered through stories/articles, learned about the current delivery of therapy methods, and determined if their sources were based on fact or misinformation.
Listen in to hear the evolution of beliefs for John as a self-advocate; Katrina as an advocate and disabilities professional, and Holly as the parent to children on alternate sides of the spectrum as well as a disabilities professional.
References from John:
These two books are responsible for changing me from a bulldog advocate to a  more compassionate and empathic person who can see things from multiple viewpoints not just within my work but in life.
I think your wrong but I’m listening (a guide to Grace-Filled Political Conversations)
by Sarah Steward Holland and Beth Silvers
These amazing ladies also run https://www.pantsuitpoliticsshow.com/
I believe I mentioned 12 steps to a compassionate life
by Karen Armstrong.

One last book that I’ve been pushing is: Divergent mind thriving in a world that wasn’t designed for you

by Jenara Nerenbeg who is a female autistic author

(this book is currently $1.99 on iBooks)
A really great blog post from my amazingly incredible BFF Katrina Boik https://soarbehaviorwa.com/inclusive-language/
Lastly I’ve been sharing this video from Simon Sinek with some autistics that talks about stop championing blunt honesty. It talks about how to adapt  and how to still be honest without being an asshole https://fb.watch/7udTXgeBNU/

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Episode #106 What NOT to say to a special needs parent

Episode #106 What NOT to say to a special needs parent

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In this episode we discuss the cringe-worthy compliments we have received over the years.  Sentiments like “God gives special children to special people” and “You are such a great advocate for your child” are meant to be confidence boosters, but over time can grate the nerves of a special needs parent.  So listen in and hear some of the well meaning comments that have irked our parents over the years!

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