Category: Self-Advocacy

#125 | Isaac’s Clubhouse Banter

#125 | Isaac’s Clubhouse Banter

What is Isaac’s Clubhouse? It’s a safe place for children on the autism spectrum to congregate, explore interests, and make connections with peers in their community. In this episode, members of our Tuesday after school Clubhouse crew join me for their first ever podcast experience. You’ll have to forgive the excessive background noise as the kids learn how to have less fidgets and quiet hands.

#116 | Self-Advocate John Lemus

#116 | Self-Advocate John Lemus

In this episode, Holly sits with well known Spokane self-advocate, John Lemus to learn more about his childhood, teen years, and adult life on the autism spectrum. He shares about profound lessons he has learned, and even opens up about his experiences dating.

References within podcast:

Anger Management at Fulcrum Institute: www.fulcrumdispute.com/angermanagement.jsp

Dating Apps to consider:

Hinge

Hiki for individuals on the autism spectrum

#115 | The Arc of Spokane

#115 | The Arc of Spokane

In this episode of ISAAC’S Autism in the Wild Holly is joined by the Executive Director of the Arc of Spokane, Sima Thorpe. Sima is here to tell us all about The Arc of Spokane and introduces us to two of her most recent hires, Jennifer and Maria. Together this group discusses the different programs available to families in our area and how we plan to work together to help meet the needs of the developmentally disabled populations in Spokane and extending into our rural areas.

The Arc of Spokane:

Questions on resources and services:

advocacy@arc-spokane.org

 

For Spokane Parent to Parent Resources:

Maria Jennings

mjennings@arc-spokane.org

509-789-8797

Facebook:  Parent to Parent of Spokane County | Facebook

 

For Pend Orielle and Stevens County Parent to Parent Resources:

Micaela Herman

mherman@arc-spokane.org

509-789-8782

Parent to Parent of Stevens and Pend Oreille Counties | Facebook

 

Sexual Abuse Prevention Training

Jim Lane

jlane@arc-spokane.org

509-789-8325

#114 Self-Advocate & Son, Caleb

#114 Self-Advocate & Son, Caleb

In this special episode of ISAAC’S Autism in the Wild, Holly is joined by her very own son, Caleb. Caleb is 13 years old and was diagnosed with autism when he was very young, in fact during this episode he reveals that he does not remember a time when he was not in therapy. Listen is as Holly discusses with Caleb; what autism means to him, what he notices in his day to day life as a child with autism, his likes/dislikes and specifically where some of them stem from, and so much more!

#113 Self-Advocate RoundTable–LIVE!

#113 Self-Advocate RoundTable–LIVE!

On this very special episode of ISAAC’S Autism in the Wild Podcast we are joined by two of our favorite self-advocates, Tracey Cohen & John Lemus.  Tracey is an author of three books, two about autism and one about her passion for running.  We had featured Tracey in an episode earlier this year and were so excited to meet her in person when she came to Spokane to visit at the end of the summer.  While Tracey was visiting we introduced her to John Lemus, a Spokane based disabilities professional who advocates for the disability community through his various positions in local and state leadership.

Please take a listen and excuse the background noise as we are recording LIVE on the stage at Pitotti Coffee  as we discuss several topics regarding advocacy.

References:

Full Spectrum Agency for Autistic Adults
Author, Autism Advocate
Episode #108 | The ABA Debate with Self-Advocate John Lemus

Episode #108 | The ABA Debate with Self-Advocate John Lemus

In this episode our host, Holly is joined by Self-Advocate John Lemus. John is an experienced Outreach Coordinator and has worked extensively in the non-profit industry, specifically in disability relations. John is a strong community and social services professional and a 2015 Graduate of Leadership Spokane. We are excited to have him, and his friend/ally/advocate, Katrina Boik on our show today to discuss the highly debated topic of ABA Therapy.
Over the past few years stories of abusive practices in ABA therapies have gained attention on social media, and as a result, a percentage of the Self-Advocate community are now fierce opponents to this and other therapies/interventions used to aid in behavior modification in children with autism and related conditions. Admittedly our panel has fallen on different sides of this argument over years as they have deciphered through stories/articles, learned about the current delivery of therapy methods, and determined if their sources were based on fact or misinformation.
Listen in to hear the evolution of beliefs for John as a self-advocate; Katrina as an advocate and disabilities professional, and Holly as the parent to children on alternate sides of the spectrum as well as a disabilities professional.
References from John:
These two books are responsible for changing me from a bulldog advocate to a  more compassionate and empathic person who can see things from multiple viewpoints not just within my work but in life.
I think your wrong but I’m listening (a guide to Grace-Filled Political Conversations)
by Sarah Steward Holland and Beth Silvers
These amazing ladies also run https://www.pantsuitpoliticsshow.com/
I believe I mentioned 12 steps to a compassionate life
by Karen Armstrong.

One last book that I’ve been pushing is: Divergent mind thriving in a world that wasn’t designed for you

by Jenara Nerenbeg who is a female autistic author

(this book is currently $1.99 on iBooks)
A really great blog post from my amazingly incredible BFF Katrina Boik https://soarbehaviorwa.com/inclusive-language/
Lastly I’ve been sharing this video from Simon Sinek with some autistics that talks about stop championing blunt honesty. It talks about how to adapt  and how to still be honest without being an asshole https://fb.watch/7udTXgeBNU/
Episode #105 | Executive Function Q&A with Becky Gardner

Episode #105 | Executive Function Q&A with Becky Gardner

In this episode of ISAAC’S Autism in the Wild we are joined again by our friend Becky Gardner of “A Life of My Own” Executive Function Coaching. Several parents have also joined us to ask her questions about executive function as it relates to their own children.  Listen in and learn along with our parents, some strategies to help launch our children successfully!

Episode 103 | Self Advocate: Sydney

Episode 103 | Self Advocate: Sydney

This week on ISAAC’S Autism in the Wild our host Holly is joined by Sydney. Sydney is a 27 year old self advocate that just relocated to Spokane from Alaska.  We cover it all in this episode: from her diagnosis as a child, to her career in Alaska, and now how she is settling in to life in Spokane. Sydney is an ambitious young woman with a strong sense of self and will be a great ambassador for self advocates in Spokane, we are happy to have met with her and look forward to collaborating with her again soon!

Episode 99 | Lack of Motivation

Episode 99 | Lack of Motivation

This week we are joined again by Becky Gardner, Executive Function Coach at A Life of My Own. We previously discussed finding and maintaining motivation for your loved ones with autism or other special needs (See Episode 89-Motivation)to help them set and achieve goals.  In this episode we take the conversation a bit deeper and discuss the reasons they may be getting stuck and how that is not a reflection of their motivation, and more so a manifestation of their frustration. Listen in to learn strategies for determining what is holding them back from making progress and how to get “un-stuck”

References: