Category: Friendships

Episode #108 | The ABA Debate with Self-Advocate John Lemus

Episode #108 | The ABA Debate with Self-Advocate John Lemus

In this episode our host, Holly is joined by Self-Advocate John Lemus. John is an experienced Outreach Coordinator and has worked extensively in the non-profit industry, specifically in disability relations. John is a strong community and social services professional and a 2015 Graduate of Leadership Spokane. We are excited to have him, and his friend/ally/advocate, Katrina Boik on our show today to discuss the highly debated topic of ABA Therapy.
Over the past few years stories of abusive practices in ABA therapies have gained attention on social media, and as a result, a percentage of the Self-Advocate community are now fierce opponents to this and other therapies/interventions used to aid in behavior modification in children with autism and related conditions. Admittedly our panel has fallen on different sides of this argument over years as they have deciphered through stories/articles, learned about the current delivery of therapy methods, and determined if their sources were based on fact or misinformation.
Listen in to hear the evolution of beliefs for John as a self-advocate; Katrina as an advocate and disabilities professional, and Holly as the parent to children on alternate sides of the spectrum as well as a disabilities professional.
References from John:
These two books are responsible for changing me from a bulldog advocate to a  more compassionate and empathic person who can see things from multiple viewpoints not just within my work but in life.
I think your wrong but I’m listening (a guide to Grace-Filled Political Conversations)
by Sarah Steward Holland and Beth Silvers
These amazing ladies also run https://www.pantsuitpoliticsshow.com/
I believe I mentioned 12 steps to a compassionate life
by Karen Armstrong.

One last book that I’ve been pushing is: Divergent mind thriving in a world that wasn’t designed for you

by Jenara Nerenbeg who is a female autistic author

(this book is currently $1.99 on iBooks)
A really great blog post from my amazingly incredible BFF Katrina Boik https://soarbehaviorwa.com/inclusive-language/
Lastly I’ve been sharing this video from Simon Sinek with some autistics that talks about stop championing blunt honesty. It talks about how to adapt  and how to still be honest without being an asshole https://fb.watch/7udTXgeBNU/
Episode #106 What NOT to say to a special needs parent

Episode #106 What NOT to say to a special needs parent

In this episode we discuss the cringe-worthy compliments we have received over the years.  Sentiments like “God gives special children to special people” and “You are such a great advocate for your child” are meant to be confidence boosters, but over time can grate the nerves of a special needs parent.  So listen in and hear some of the well meaning comments that have irked our parents over the years!

Episode 103 | Self Advocate: Sydney

Episode 103 | Self Advocate: Sydney

This week on ISAAC’S Autism in the Wild our host Holly is joined by Sydney. Sydney is a 27 year old self advocate that just relocated to Spokane from Alaska.  We cover it all in this episode: from her diagnosis as a child, to her career in Alaska, and now how she is settling in to life in Spokane. Sydney is an ambitious young woman with a strong sense of self and will be a great ambassador for self advocates in Spokane, we are happy to have met with her and look forward to collaborating with her again soon!

Episode 102 | Bullying

Episode 102 | Bullying

In this episode we discuss bullying, we have talked about this in the past in other episodes but felt that we had enough content to re-visit and dedicate an entire episode.  We have three moms joining our host Holly and all of them have dealt with bullying to some extent when raising their children.  Each of the parents recount the situations and share how the issues were resolved. We also discuss how the world has changed and cover how the bullying of 2021 compares to the “bully standards” of the 1990s when we were living the middle/high school experience.

UPDATE: Be sure to listen after the closing statements, we get a little update from Holly regarding Caleb’s rocket project in school

References:

Power of words: TikTok video by _iamdiosa_

Episode 93 | Therapy Interventions, a self advocate’s take

Episode 93 | Therapy Interventions, a self advocate’s take

Welcome to another episode of ISAAC’s Autism in the Wild.  This week we are discussing therapy interventions.  While we have discussed many of these interventions at length in the past we have a unique viewpoint we would love to share.  Gillis Williams, aka “GW” is joining Holly again to discuss his view of the therapy interventions he received as a child. They discuss which interventions his family sought out and which were the most beneficial and enjoyable from his viewpoint.

 

Follow GW on social media at: Autism Chose Me, info@autismchoseme.com

autismchoseme.com

FB/Insta/Youtube/Twitter/TikTok @autismchoseme

Episode 88 | Things we wish everyone knew about autism

Episode 88 | Things we wish everyone knew about autism

In this episode of ISAAC’S Autism in the Wild we discuss thing’s we wish EVERYONE knew about autism. In our day-to-day as autism parents we are frequently coming in contact with people that just don’t understand our children. Often times a stranger will witness our child’s moment of anxiety-driven meltdown and make the assumption that the child is simply choosing to misbehave. On the flip side, a person may meet a child with high functioning autism and ask “What is his/her special talent?”  No matter how well intentioned there is a true lack of understanding regarding autism that directly impacts societies view on their abilities.  Listen in as we discuss the main issues these moms wish everyone understood about autism.

Reference:

Beyond Behaviors by Monda Delahooke, Phd

Episode 76 | Masking & Bullying

Episode 76 | Masking & Bullying

On today’s episode we talk with executive function coach Becky Garder of “A Life of My Own.” We discuss the common defense mechanism many people (including the autistic population) use to “fit in,” known as masking.  Or the idea that if you change or “mask” your identity in order to fit in with those around you. Masking can make social interactions less painful/tense. Although this method can seem to help in short periods of time, the long term affects are disastrous to self esteem.  Today we discuss with Becky, what masking is, what it looks like, and how to redirect to avoid burnout.

References:

Blog describing Autistic Burnout that was read part of in the podcast:
Autistic Exhaustion”
by Rhi (July, 17, 2019)
All posts found here: https://autistrhi.com/
This article showcases how autism can be seen through another, strengths-based/neurodiversity, lens

Uniquely Human (A Different Way of Seeing Autism) – July 1, 2016

by Barry M. Prizant

https://www.amazon.com/Uniquely-Human-Different-Seeing-Autism/dp/1476776245/ref=sr_1_1?dchild=1&keywords=uniquely+human&qid=1607632922&sr=8-1

And, btw, this book is a great Xmas gift for people!! Just saying…..😏

Episode #64 | Autism & Friendship

Episode #64 | Autism & Friendship

This week we have a great panel of parents discussing the ins and outs of friendship as it relates to their kiddos with autism.  There is a common myth that children with autism generally do not crave the attention of peers and will not seek out friendship.  Although that may be true to some capacity for some of our children, it is most definitely not the case for all children with autism.  Many of our children still enjoy and seek meaningful friendship with their peers, it just may not always look the same as it does with our neurotypical children.

Listen in to hear us discuss the Friendship Algorithm which was brought to us through the TV sitcom “The Big Bang Theory.” Although this algorithm was written to be comical, it is actually a great tool to approach friendship and learning the boundaries and intent of your actions to make and maintain friends.

Finally we share stories of friendships gone well…and not so well, and how these particular parents handled these situations.

Episode #44 | Protecting Your Child from Leaches and Bad Influences

Episode #44 | Protecting Your Child from Leaches and Bad Influences

In these complicated times, it’s easy to be taken advantage of with out without a disability. Family members join me to share examples of times their loved one has been socially prayed upon by those who lack good intentions. These families share:

  • Successful ways to deal with friends who are taking advantage of their family member
  • Silver lining experiences
  • Lessons learned and steps to take to protect your child
Episode #37 | Loss of Adult Relationships After the Diagnosis

Episode #37 | Loss of Adult Relationships After the Diagnosis

The loss of adult relationships after an autism or other diagnosis is really not that uncommon. Since friendships are often forged based on common interests, hobbies, and kids, these connections can become fractured when our paths take a different turn after a diagnosis. In this podcast we talk about situations where friendships have ended and where new friendships have been formed. We also talk about defense mechanisms that might be in place to protect our hearts from hurt and rejection.