Category: Community

Episode 95 | Vaccination Schedules

Episode 95 | Vaccination Schedules

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Did you vaccinate your child along a traditional vaccination schedule? We chat with a few special needs moms in this episode that have varying views regarding vaccination. We discuss how they worked with their doctors to protect their children from disease in a way that was most comfortable for them and their children. We also dissect information from both sides of the vaccine debate and dip a toe into the controversial topic of Covid-19 vaccines. Listen in to hear the decisions these parents made to ensure their children meet public school vaccine regulations, stay safe from disease, and how they handle the criticism of others with differing views.

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Episode 94 | Sabita Finds Her Voice: Advocacy for the nonverbal

Episode 94 | Sabita Finds Her Voice: Advocacy for the nonverbal

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This week on ISAAC’S Autism in the Wild podcast Holly is joined by an amazing mother, entrepreneur, and advocate for the nonverbal community, Dr Stephanie Vavilala.  We were honored to zoom chat with Dr Stephanie about the amazing facility she is opening as well as the services she is currently offering in St. Augustine Florida through her LMH practice Therapeutic Expressions and her nonprofit organization Sabita Speaks. Listen in as we discuss important programs that have been created to fill the many gaps in special needs care across the country and the release of Dr. Stephanie’s book, Sabita Finds Her Voice which serves as a flagship for educating the youth about AAC Speech Devices and how they can better bridge the gap between the verbal and non-verbal populations.
Dr. Stephanie Vavilala, Ed.D, LMHC, BCBA, RPT-S is the CEO and founder of Therapeutic Expressions and Awetism Wonderland (an autism therapy center), as well as the author of the children’s book Sabita Finds Her Voice. She is the mother of a daughter who has autism and is non verbal, Sabita. Stephanie’s daughter inspired her to become a leader in the space of special needs. Her therapeutic style is holistic, empowering, and action-oriented. She and her daughter reside in St. Augustine, Florida.

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Episode 91 | Self Advocate, GW of Autism Chose Me

Episode 91 | Self Advocate, GW of Autism Chose Me

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Today we are joined by Gillis Williams or GW of “Autism Chose Me.”  GW is an incredible self- advocate for persons affected by autism spectrum disorder.  Listen in as we discuss the controversy between the “light it up blue” and “red instead” movements and discuss how both missions have impactful goals that are beneficial to the autism community.

About GW:

When I was five years old, I was diagnosed with autism. From grade school to high school issues I had included listening problems, struggles following directions in class, and repetitive behaviors such as flapping my hands and repeating random words or sentences. I also struggled making friends because kids in school didn’t understand my behaviors. Even my teachers, who tried to support me in all the ways they could, didn’t understand me either. However, with my supportive family at my side, we worked TOGETHER to get me help. They placed me in occupational and music therapies in grade school that assisted kids with disabilities, and also with hard work and dedication, I have become a successful speaker and entrepreneur, something that scientific research 15 years ago stated that hardly any autistic individual would have been able to accomplish. Most importantly, I have made friends along the way that understand me and support me. Without my family and friends for support, I would not have had any helpers throughout my life to “HELP” me overcome and accomplish! As the great Mr. Fred Rogers stated, “Look for the helpers. You will always find people who are helping.”

Social Media Advocates to look up:   @paigelayle   @reberrabon_bon @blackautisticking   @raincloud.heart   @resident_cryptid   @autistic.alex @evelyn.jeans   @lafilledani   @autienelle

Follow GW on social media at: Autism Chose Me, info@autismchoseme.com

autismchoseme.com

FB/Insta/Youtube/Twitter/TikTok @autismchoseme

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Episode 90 | Dirty Looks in Public Revisited

Episode 90 | Dirty Looks in Public Revisited

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One of our most downloaded episodes of ISAAC’s Autism in the Wild has been our “Dirty Looks in Public” recording.  It seems that no matter where you are in your autism journey, you have a story to share about that time you were in public and felt the shaming glances from strangers, judging you and your parenting abilities.  It is inevitable, and it is one of the worst experiences as a special needs parent. Today we are joined by a new panel of parents and talking about all of those cringey moments, how we dealt with them in the moment and how we would like other’s to respond when we are in a moment of meltdown at Target.

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Episode 89 | Motivation

Episode 89 | Motivation

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In this episode of ISAAC’s Autism in the Wild, we are joined again by Becky Gardner, Executive Function Coach at: A Life of My Own to discuss motivation.  Finding and maintaining motivation is a tricky task in a nuerotypical brain–so for our loved ones on the autism spectrum we have to really dial in to determine which means of motivation will be successful.  It is a process and can be discouraging, however the benefits to finding a sustainable intrinsic motivation can be life changing.

References:

Self-Determination Theory of Motivation: Why Intrinsic Motivation Matters

Courtney E. Ackerman, MA., 2-15-2021 (Synopsis of Ryan and Deci’s work on Self-Determination Theory and Intrinsic Motivation)

https://positivepsychology.com/self-determination-theory/#:~:text=It%20posits%20that%20there%20are,in%20the%201970s%20and%201980s.

 

Drive. By Daniel Pink (book)

Key Concepts-

– Autonomy: “Control leads to compliance; autonomy leads to engagement.” Control is by others, from outside (extrinsic motivators) – in some situations this leads to compliance but does not lead to desire. Autonomy is from within (intrinsic) – by definition it leads to a true desire to engage with the activity.

– Mastery: “One source of frustration … is the frequent mismatch between what people must do and what people can do. When what they must do exceeds their capabilities, the result is anxiety. When what they must do falls short of their capabilities, the result is boredom. But when the match is just right, the results can be glorious.”

– Purpose: “Human beings have an innate inner drive to be autonomous, self‐determined, and connected to one another. And when that drive is liberated, people achieve more and live richer lives.”

 

TED Talk: “The Puzzle of Motivation” By Dan Pink

Although used in a different context, the science is valid and the research applies.

https://youtu.be/rrkrvAUbU9Y

 

Executive Functioning  –

> Smarts: Are We Hardwired for Success? (Book) by Chuck Martin , Peg Dawson, Richard Guare

> Smart but Scattered: The Revolutionary “Executive Skills” Approach to Helping Kids Reach Their Potential (Book) by Peg Dawson and Richard Guare

 

Collaborative Problem Solving –

> Rethinking Challenging Kids: Where There’s a Skill There’s a Way, Stuart Ablon https://youtu.be/wgNpGThLl2U

> Changeable: How Collaborative Problem Solving Changes Lives at Home, at School, and at Work (Book) by J. Stuart Ablon

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Episode 88 | Things we wish everyone knew about autism

Episode 88 | Things we wish everyone knew about autism

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In this episode of ISAAC’S Autism in the Wild we discuss thing’s we wish EVERYONE knew about autism. In our day-to-day as autism parents we are frequently coming in contact with people that just don’t understand our children. Often times a stranger will witness our child’s moment of anxiety-driven meltdown and make the assumption that the child is simply choosing to misbehave. On the flip side, a person may meet a child with high functioning autism and ask “What is his/her special talent?”  No matter how well intentioned there is a true lack of understanding regarding autism that directly impacts societies view on their abilities.  Listen in as we discuss the main issues these moms wish everyone understood about autism.

Reference:

Beyond Behaviors by Monda Delahooke, Phd

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Episode 82 | Indoor Activities

Episode 82 | Indoor Activities

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In today’s episode we talk about ways to keep your children entertained when the weather just doesn’t allow you to go outside.  During the covid-19 lockdown we are all stuck inside, alone, and our kids are starting to climb the walls!  How are you keeping your kids busy and entertained when the outside world is closed?  We discuss this with several of our autism parents and discuss different activities that have been successful in our homes. Toward the end of the program we also dip into outdoor winter activities and found that most of the resistance to outdoor fun–actually comes from ourselves as parents. Listen in and see if you agree!

Laser Tag: (several variations available online, this is the one that we purchased) https://www.amazon.com/gp/product/B07ZPGM6NQ/ref=ppx_yo_dt_b_asin_image_o02_s00?ie=UTF8&psc=1

 

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Episode 79 | Self Care During a Pandemic

Episode 79 | Self Care During a Pandemic

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This week ISAAC’S Autism in the Wild checks in with a few parents to see how they are keeping sane during these insane times.  We are now over 9 months into the COVID-19 pandemic and discuss how our own self care looks as we have settled into the new normal.  We discuss alone time, sleep, hobbies, social media and more. We also explore how our thoughts on self care have changed as we’ve adjusted to the decline in social interaction.

 

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Episode 78 | De-stigmatizing Group Homes

Episode 78 | De-stigmatizing Group Homes

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On this episode of ISAAC’s Autism in the Wild we discuss group homes.  Over the years we have heard many polarized conversations regarding the care of those with disabilities.  Often times a group setting is the most beneficial placement for a child with behavioral issues. We are happy to talk with Judi, from Visions for a New Beginning, who has started group home facilities in the Spokane area that find that happy medium between structured group home and a happy loving family home.  Visions for a New Beginning has 5 locations in the Spokane area, all housing children that needed more support to address their behavioral and emotional needs. Judi is there with open arms to take in these children and help them find the structure and comfort they need to excel.

Listen in as we discuss some of the stigmas surrounding group care facilities and learn how Judi has seen these obstacles and worked to provide loving caring support teams to assist these children.

Visions For A New Beginning

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Episode 77 | Parent Support

Episode 77 | Parent Support

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In this episode of ISAAC’s Autism in the Wild we discuss support options for parents with children on the spectrum. Thanks to technology there are many more outlets for parents than there were in the years past. We discuss these opportunities with a couple of autism parents; Phara, mother to a young adult male, and David, father to a school-aged girl. We talk about the emergence of facebook support groups, programs through local non-profits (including The ISAAC Foundation’s Parent Nights Out), and focus on the emotional aspects of parenting a child with special needs.

References:

The ISAAC Foundation Parent Support Opportunities

Arc of Spokane: Parent to Parent Program

DADS Move: Support Groups

 

Facebook Groups: There are a ton of specialty groups out there, just search by keywords (autism/asd/special needs/neurodiverse/etc. local to your area.

*tip*If your child is diagnosed as ASD 1 be sure to look up “asperger” as many of these groups were formed when asperger was still a clinical diagnosis.

Asperger Experts

Asperger Parents

Special Kids of Spokane

You Too? Support in Spokane for Parents with Special Kids

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