Tag: Autism Conflict

Episode #108 | The ABA Debate with Self-Advocate John Lemus

Episode #108 | The ABA Debate with Self-Advocate John Lemus

In this episode our host, Holly is joined by Self-Advocate John Lemus. John is an experienced Outreach Coordinator and has worked extensively in the non-profit industry, specifically in disability relations. John is a strong community and social services professional and a 2015 Graduate of Leadership Spokane. We are excited to have him, and his friend/ally/advocate, Katrina Boik on our show today to discuss the highly debated topic of ABA Therapy.
Over the past few years stories of abusive practices in ABA therapies have gained attention on social media, and as a result, a percentage of the Self-Advocate community are now fierce opponents to this and other therapies/interventions used to aid in behavior modification in children with autism and related conditions. Admittedly our panel has fallen on different sides of this argument over years as they have deciphered through stories/articles, learned about the current delivery of therapy methods, and determined if their sources were based on fact or misinformation.
Listen in to hear the evolution of beliefs for John as a self-advocate; Katrina as an advocate and disabilities professional, and Holly as the parent to children on alternate sides of the spectrum as well as a disabilities professional.
References from John:
These two books are responsible for changing me from a bulldog advocate to a  more compassionate and empathic person who can see things from multiple viewpoints not just within my work but in life.
I think your wrong but I’m listening (a guide to Grace-Filled Political Conversations)
by Sarah Steward Holland and Beth Silvers
These amazing ladies also run https://www.pantsuitpoliticsshow.com/
I believe I mentioned 12 steps to a compassionate life
by Karen Armstrong.

One last book that I’ve been pushing is: Divergent mind thriving in a world that wasn’t designed for you

by Jenara Nerenbeg who is a female autistic author

(this book is currently $1.99 on iBooks)
A really great blog post from my amazingly incredible BFF Katrina Boik https://soarbehaviorwa.com/inclusive-language/
Lastly I’ve been sharing this video from Simon Sinek with some autistics that talks about stop championing blunt honesty. It talks about how to adapt  and how to still be honest without being an asshole https://fb.watch/7udTXgeBNU/
Episode #107 | Autism & Siblings-Kelly’s Story

Episode #107 | Autism & Siblings-Kelly’s Story

This week on ISAAC’S Autism in the Wild our host Holly is joined by a VERY special guest, her daughter Kelly.  Kelly is 11 years old and has been raised in an “autism house” since day one.  Her older brother Caleb (13yrs) has ASD 1 and now through Holly’s recent marriage she has gained an 18 year old step-brother, Cooper, who is more significantly impacted.

On this episode we discuss what life is like as a neuro-typical kid in a home where autism is present.  As Kelly will divulge it is not all roses and sunshine, despite that, Kelly has a very optimistic view of her life and the challenges autism presents in general.  Kelly is a very kind, empathetic young woman that is a fierce advocate for her brothers.  She discusses the issues that have arisen as a result of autism, how she has dealt with those issues, as well as what she sees in the future for herself and her brothers with autism.

Episode 102 | Bullying

Episode 102 | Bullying

In this episode we discuss bullying, we have talked about this in the past in other episodes but felt that we had enough content to re-visit and dedicate an entire episode.  We have three moms joining our host Holly and all of them have dealt with bullying to some extent when raising their children.  Each of the parents recount the situations and share how the issues were resolved. We also discuss how the world has changed and cover how the bullying of 2021 compares to the “bully standards” of the 1990s when we were living the middle/high school experience.

UPDATE: Be sure to listen after the closing statements, we get a little update from Holly regarding Caleb’s rocket project in school

References:

Power of words: TikTok video by _iamdiosa_

Episode 97 | Launching Adult Children

Episode 97 | Launching Adult Children

In this episode we are joined by two moms that both have young-adult children that are preparing to launch towards independence. Phara has a 23 year year old son and is currently preparing for their second-attempt at launching her son into independent living. Gerriann has an 18 year old son who is just graduating high school and will be continuing in the school system through a transition program.

We discuss with each parent the issues they are facing, the barriers to employment/living situations they are encountering, and the programs they have been utilizing to make positive progress. We also have a conversation about the needs of the parents and the importance of finding a support network and planning for the future.

If you have questions for any of our guests, please feel free to email us at hello@theisaacfoundation.org and we would be happy to get you in contact with them!

Episode 92 | Don’t Sweat the Small Stuff

Episode 92 | Don’t Sweat the Small Stuff

This week on ISAAC’s Autism in the Wild, Holly is joined by three special needs parents and they are discussing the fights that just aren’t worth fighting. These are the tasks that at one point in their life were worth an argument, but now in hindsight, were not worth the time/energy invested.  We discuss topics like wearing appropriate footwear, screen-time, and dinner table etiquette.

Huge thanks to our new podcast voice, Nicole, who shared a gem of wisdom with us “Don’t accept criticism from someone you wouldn’t ask for advice” this sentiment was a great voice of reason while discussing the constant criticisms special needs parent’s tend to find themself surrounded by.

Episode 90 | Dirty Looks in Public Revisited

Episode 90 | Dirty Looks in Public Revisited

One of our most downloaded episodes of ISAAC’s Autism in the Wild has been our “Dirty Looks in Public” recording.  It seems that no matter where you are in your autism journey, you have a story to share about that time you were in public and felt the shaming glances from strangers, judging you and your parenting abilities.  It is inevitable, and it is one of the worst experiences as a special needs parent. Today we are joined by a new panel of parents and talking about all of those cringey moments, how we dealt with them in the moment and how we would like other’s to respond when we are in a moment of meltdown at Target.

Episode 77 | Parent Support

Episode 77 | Parent Support

In this episode of ISAAC’s Autism in the Wild we discuss support options for parents with children on the spectrum. Thanks to technology there are many more outlets for parents than there were in the years past. We discuss these opportunities with a couple of autism parents; Phara, mother to a young adult male, and David, father to a school-aged girl. We talk about the emergence of facebook support groups, programs through local non-profits (including The ISAAC Foundation’s Parent Nights Out), and focus on the emotional aspects of parenting a child with special needs.

References:

The ISAAC Foundation Parent Support Opportunities

Arc of Spokane: Parent to Parent Program

DADS Move: Support Groups

 

Facebook Groups: There are a ton of specialty groups out there, just search by keywords (autism/asd/special needs/neurodiverse/etc. local to your area.

*tip*If your child is diagnosed as ASD 1 be sure to look up “asperger” as many of these groups were formed when asperger was still a clinical diagnosis.

Asperger Experts

Asperger Parents

Special Kids of Spokane

You Too? Support in Spokane for Parents with Special Kids

Episode 76 | Masking & Bullying

Episode 76 | Masking & Bullying

On today’s episode we talk with executive function coach Becky Garder of “A Life of My Own.” We discuss the common defense mechanism many people (including the autistic population) use to “fit in,” known as masking.  Or the idea that if you change or “mask” your identity in order to fit in with those around you. Masking can make social interactions less painful/tense. Although this method can seem to help in short periods of time, the long term affects are disastrous to self esteem.  Today we discuss with Becky, what masking is, what it looks like, and how to redirect to avoid burnout.

References:

Blog describing Autistic Burnout that was read part of in the podcast:
Autistic Exhaustion”
by Rhi (July, 17, 2019)
All posts found here: https://autistrhi.com/
This article showcases how autism can be seen through another, strengths-based/neurodiversity, lens

Uniquely Human (A Different Way of Seeing Autism) – July 1, 2016

by Barry M. Prizant

https://www.amazon.com/Uniquely-Human-Different-Seeing-Autism/dp/1476776245/ref=sr_1_1?dchild=1&keywords=uniquely+human&qid=1607632922&sr=8-1

And, btw, this book is a great Xmas gift for people!! Just saying…..😏

Episode #64 | Autism & Friendship

Episode #64 | Autism & Friendship

This week we have a great panel of parents discussing the ins and outs of friendship as it relates to their kiddos with autism.  There is a common myth that children with autism generally do not crave the attention of peers and will not seek out friendship.  Although that may be true to some capacity for some of our children, it is most definitely not the case for all children with autism.  Many of our children still enjoy and seek meaningful friendship with their peers, it just may not always look the same as it does with our neurotypical children.

Listen in to hear us discuss the Friendship Algorithm which was brought to us through the TV sitcom “The Big Bang Theory.” Although this algorithm was written to be comical, it is actually a great tool to approach friendship and learning the boundaries and intent of your actions to make and maintain friends.

Finally we share stories of friendships gone well…and not so well, and how these particular parents handled these situations.

Episode #50 | Autism Language Debate

Episode #50 | Autism Language Debate

In this podcast, we discuss the language and symbols most commonly used within our autism community and how it relates to our loved ones touched by autism.  We discuss why parents choose certain language and how it can help and, at times, hinder our ability to effectively communicate information about our loved ones; specifically when engaging in discussions with individuals in our community who may have less knowledge of the disorder.

We discuss:

  • Autistic vs. Person with autism (AKA people first language)
  • Heavily touched vs. low functioning
  • High functioning vs. Aspergers
  • Autistic vs. Neuro-Diverse
  • Touched by autism vs. impacted by autism
  • Disabled vs. Differently-Abled