Tag: Autism in the Wild

Episode #107 | Autism & Siblings-Kelly’s Story

Episode #107 | Autism & Siblings-Kelly’s Story

This week on ISAAC’S Autism in the Wild our host Holly is joined by a VERY special guest, her daughter Kelly.  Kelly is 11 years old and has been raised in an “autism house” since day one.  Her older brother Caleb (13yrs) has ASD 1 and now through Holly’s recent marriage she has gained an 18 year old step-brother, Cooper, who is more significantly impacted.

On this episode we discuss what life is like as a neuro-typical kid in a home where autism is present.  As Kelly will divulge it is not all roses and sunshine, despite that, Kelly has a very optimistic view of her life and the challenges autism presents in general.  Kelly is a very kind, empathetic young woman that is a fierce advocate for her brothers.  She discusses the issues that have arisen as a result of autism, how she has dealt with those issues, as well as what she sees in the future for herself and her brothers with autism.

Episode #106 What NOT to say to a special needs parent

Episode #106 What NOT to say to a special needs parent

In this episode we discuss the cringe-worthy compliments we have received over the years.  Sentiments like “God gives special children to special people” and “You are such a great advocate for your child” are meant to be confidence boosters, but over time can grate the nerves of a special needs parent.  So listen in and hear some of the well meaning comments that have irked our parents over the years!

Episode #104 | Housing Options for Adults

Episode #104 | Housing Options for Adults

In this episode we are joined by Desiree Kameka Galloway of The Autism Housing Network. Holly had first learned of their work as well as the Madison House Autism Foundation a few years back while attending a conference about “Life After High School.” Holly was so impressed with Desiree’s presentation and has used their site as a reference to our families for years.  The ISAAC Foundation has been receiving more and more calls from parents regarding concerns for long term living situations for their adult children in recent years so we reached out to Desiree to see if she could explain some of the housing options that exist and what the Autism Housing Network can do to help families as they determine the long term plans for their loved ones.

Contact Info:

Desiree Kameka Galloway
National Coordinator, Coalition for Community Choice
100th Episode | PART ONE

100th Episode | PART ONE

Join us for a special episode of ISAAC’S Autism in the wild, our 100th episode!

To commemorate we held our first group in-person podcast recording since before the pandemic.  It was amazing to see people’s faces again and enjoy some of the camaraderie we have been missing out on (including opening up some One Tree Cider).

For this episode we are joined by parents: David, Michelle, Maria,  Angela, Chevy, and Karly, some of the voices you regularly hear and a few newer ladies we know you love!  Full Disclosure-with a group this size we barely got through introductions before we had to wrap–so this is a two part special!  Listen in to this part and part two which will be available immediately!

100th Episode | PART TWO

100th Episode | PART TWO

Welcome back to Part Two of our 100th episode special recording! We have a great group of parents together–in person–for the first time since before the pandemic.  In this section of the recording we discuss our favorite podcast episodes and discuss how podcasting has affected each of them.

If you are interested in joining us on a podcast and telling your story please complete this form and we will be in contact to get you scheduled so you can meet the network of amazing families we work with!

 

Episode 89 | Motivation

Episode 89 | Motivation

In this episode of ISAAC’s Autism in the Wild, we are joined again by Becky Gardner, Executive Function Coach at: A Life of My Own to discuss motivation.  Finding and maintaining motivation is a tricky task in a nuerotypical brain–so for our loved ones on the autism spectrum we have to really dial in to determine which means of motivation will be successful.  It is a process and can be discouraging, however the benefits to finding a sustainable intrinsic motivation can be life changing.

References:

Self-Determination Theory of Motivation: Why Intrinsic Motivation Matters

Courtney E. Ackerman, MA., 2-15-2021 (Synopsis of Ryan and Deci’s work on Self-Determination Theory and Intrinsic Motivation)

https://positivepsychology.com/self-determination-theory/#:~:text=It%20posits%20that%20there%20are,in%20the%201970s%20and%201980s.

 

Drive. By Daniel Pink (book)

Key Concepts-

– Autonomy: “Control leads to compliance; autonomy leads to engagement.” Control is by others, from outside (extrinsic motivators) – in some situations this leads to compliance but does not lead to desire. Autonomy is from within (intrinsic) – by definition it leads to a true desire to engage with the activity.

– Mastery: “One source of frustration … is the frequent mismatch between what people must do and what people can do. When what they must do exceeds their capabilities, the result is anxiety. When what they must do falls short of their capabilities, the result is boredom. But when the match is just right, the results can be glorious.”

– Purpose: “Human beings have an innate inner drive to be autonomous, self‐determined, and connected to one another. And when that drive is liberated, people achieve more and live richer lives.”

 

TED Talk: “The Puzzle of Motivation” By Dan Pink

Although used in a different context, the science is valid and the research applies.

https://youtu.be/rrkrvAUbU9Y

 

Executive Functioning  –

Smarts: Are We Hardwired for Success? (Book) by Chuck Martin , Peg Dawson, Richard Guare

Smart but Scattered: The Revolutionary “Executive Skills” Approach to Helping Kids Reach Their Potential (Book) by Peg Dawson and Richard Guare

 

Collaborative Problem Solving –

> Rethinking Challenging Kids: Where There’s a Skill There’s a Way, Stuart Ablon https://youtu.be/wgNpGThLl2U

Changeable: How Collaborative Problem Solving Changes Lives at Home, at School, and at Work (Book) by J. Stuart Ablon

Episode #74 | Station Visits

Episode #74 | Station Visits

On today’s episode we discuss the ISAAC Foundation Station Visit program.  We are joined by Lt. Matt Cowles of the Spokane Police Department, and Lt. John Goodman of the Spokane Fire Department. Joined by Holly of the The ISAAC Foundation, this group helped to create the Station Visit program that generally takes place every other month at both a Spokane, and Spokane Valley fire station (big thanks to the Spokane AMR first responders for their contributions as well!).

We discuss why the program was invented, the curriculum that is covered, and we share some fun anecdotes from past visits. If you have a loved one impacted with autism or other special needs this program is pivotal in creating safe perceptions of emergency personnel in case the day comes where they need to interact.

Podcast #40 | Media Characters: Do they help or hurt the public’s perception of autism

Podcast #40 | Media Characters: Do they help or hurt the public’s perception of autism

In this episode of ISAAC’s Autism in the Wild Podcast, a group of parents joined me remotely to talk about various television, movie, and theater characters who depict autism and whether they are truly helpful in educating the public about autism spectrum disorders. We also talk about the gaps in portraying those that are more significantly impacted by autism and other disabilities.

Episode #35 | Regression

Episode #35 | Regression

As special needs parents, we celebrate milestones that other parents might take for granted when raising a neuro-typical child. However, with progress often comes periods of regression which can be heart wrenching and depressing to endure.  In this episode of ISAAC’s Autism in the Wild we talk about regression and how it looks for different families AS WELL as some positive experiences that parents have encountered from periods of regression.

Episode #33 | Step-Parent Challenges

Episode #33 | Step-Parent Challenges

Marriage takes work. This is a common sentiment that rings true for most couples.  In prior episodes we have discussed the toll that can be taken on a marriage while parenting your own children with special needs, but on this special episode we focused on an additional niche, parenting a step-child with autism.  Or on the opposite side of this topic, working with exes and new step-parents to your child.  Emotions can run high when discussing health/safety/discipline needs with an outside yet permanent second party.

Listen in as our panel of autism parents discusses their personal journey through parenting their children/step-children with special needs and maintaining/rebuilding their personal relationships.