Tag: Family

Episode #106 What NOT to say to a special needs parent

Episode #106 What NOT to say to a special needs parent

In this episode we discuss the cringe-worthy compliments we have received over the years.  Sentiments like “God gives special children to special people” and “You are such a great advocate for your child” are meant to be confidence boosters, but over time can grate the nerves of a special needs parent.  So listen in and hear some of the well meaning comments that have irked our parents over the years!

Episode #104 | Housing Options for Adults

Episode #104 | Housing Options for Adults

In this episode we are joined by Desiree Kameka Galloway of The Autism Housing Network. Holly had first learned of their work as well as the Madison House Autism Foundation a few years back while attending a conference about “Life After High School.” Holly was so impressed with Desiree’s presentation and has used their site as a reference to our families for years.  The ISAAC Foundation has been receiving more and more calls from parents regarding concerns for long term living situations for their adult children in recent years so we reached out to Desiree to see if she could explain some of the housing options that exist and what the Autism Housing Network can do to help families as they determine the long term plans for their loved ones.

Contact Info:

Desiree Kameka Galloway
National Coordinator, Coalition for Community Choice
Episode 103 | Self Advocate: Sydney

Episode 103 | Self Advocate: Sydney

This week on ISAAC’S Autism in the Wild our host Holly is joined by Sydney. Sydney is a 27 year old self advocate that just relocated to Spokane from Alaska.  We cover it all in this episode: from her diagnosis as a child, to her career in Alaska, and now how she is settling in to life in Spokane. Sydney is an ambitious young woman with a strong sense of self and will be a great ambassador for self advocates in Spokane, we are happy to have met with her and look forward to collaborating with her again soon!

Episode 97 | Launching Adult Children

Episode 97 | Launching Adult Children

In this episode we are joined by two moms that both have young-adult children that are preparing to launch towards independence. Phara has a 23 year year old son and is currently preparing for their second-attempt at launching her son into independent living. Gerriann has an 18 year old son who is just graduating high school and will be continuing in the school system through a transition program.

We discuss with each parent the issues they are facing, the barriers to employment/living situations they are encountering, and the programs they have been utilizing to make positive progress. We also have a conversation about the needs of the parents and the importance of finding a support network and planning for the future.

If you have questions for any of our guests, please feel free to email us at hello@theisaacfoundation.org and we would be happy to get you in contact with them!

Episode 96 | Creative Ways to Administer Meds

Episode 96 | Creative Ways to Administer Meds

Do you have a child that just hates taking their medication? Then this is the episode for you!  We are joined by Amanda Hansen, a local special needs mom and friend to the ISAAC Foundation, to discuss the creative avenues she has found to administer medication to her son Trevin.  Listen in to learn some of the tricks she and Holly have learned over the years and laugh along with these mom’s as they discuss the trials that did not end so well.

Episode 94 | Sabita Finds Her Voice: Advocacy for the nonverbal

Episode 94 | Sabita Finds Her Voice: Advocacy for the nonverbal

This week on ISAAC’S Autism in the Wild podcast Holly is joined by an amazing mother, entrepreneur, and advocate for the nonverbal community, Dr Stephanie Vavilala.  We were honored to zoom chat with Dr Stephanie about the amazing facility she is opening as well as the services she is currently offering in St. Augustine Florida through her LMH practice Therapeutic Expressions and her nonprofit organization Sabita Speaks. Listen in as we discuss important programs that have been created to fill the many gaps in special needs care across the country and the release of Dr. Stephanie’s book, Sabita Finds Her Voice which serves as a flagship for educating the youth about AAC Speech Devices and how they can better bridge the gap between the verbal and non-verbal populations.
Dr. Stephanie Vavilala, Ed.D, LMHC, BCBA, RPT-S is the CEO and founder of Therapeutic Expressions and Awetism Wonderland (an autism therapy center), as well as the author of the children’s book Sabita Finds Her Voice. She is the mother of a daughter who has autism and is non verbal, Sabita. Stephanie’s daughter inspired her to become a leader in the space of special needs. Her therapeutic style is holistic, empowering, and action-oriented. She and her daughter reside in St. Augustine, Florida.
Episode #63 | Extra-Curricular Activities

Episode #63 | Extra-Curricular Activities

Extra-curricular activities are often an important outlet for all children to take part in during their school year.  These opportunities bring about the benefit of physical activity, social and emotional communication with peers, a sense of community and more.  But are all special needs extra curricular activities created equal?  And how do we find activities our kiddos are actually interested in participating in?  Today we discuss with a few autism parents what activities they have tried, which were successful, and which were duds!

Contact Info for some of the programs we discussed:

  • Bambino Buddy-Ball | bambinobballmom1@yahoo.com | (509) 251-2588
  • Adaptive Skiing & Snowboarding | Spokaneparks.org | mtspokane.com/specialty-programs
  • Spokane Powderhounds | (509) 999-8586 Downhill skiing and snowboarding program for individuals with special needs.
  • Adaptive Skiing: (509)714-7654 for individuals with mobiity challenges.
  • Blue Waxers | Cross Country Skiing | (509) 953-6062.
  • iCan Shine Bike Camp | icanshine.org/ican-bike-spokane-wa/ | (509) 999-9603 Contact Casey Traver: icanshine.spokane@comcast.net
  • Lilac City Warriors | Lilac City Warriors’ Facebook Page, A Youth Special Olympics’ track and field team
  • PASS Soccer | monaca.pass@gmail.com | (509) 862-8065 PASS (Player Adaptive Soccer Skills) is an organization that provides soccer to children and adults with physical and/or cognitive challenges.
  • Gonzaga Exceptional Bulldogs Hockey Team | gonzagaexceptionalbulldogs@gmail.com Any child, 5 years–High School who is Differently Abled. Sponsored by Gonzaga University. Coach Mark Derby: (509) 590-9926
Episode #6 | Making it Fair Among Your Children

Episode #6 | Making it Fair Among Your Children

In this episode, a group of parents joined me to debate whether its possible to make it “fair” when raising both neuro-typical and neuro-diverse kids.   Join us for:

  • Deeper discussion on how to treat each child equal, which may not seem fair.
  • What constitutes fair?
  • The benefits of one-on-one time with each child separately.
  • Fairness between the sexes (boys vs. girls).
  • Fairness meter among siblings.