Usually, Caleb counts down the days leading up to his birthday with excitment. This year, he woke up on his 15th birthday with debilitating anxiety about the prospect of getting one year closer to adulthood. In this podcast, Caleb talks about his anxieties related to all the elements of becoming an adult and strategies we can utilize to overcome some of his stressors.
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On this week’s episode, Maria Jennings joins me to discuss the dynamic that having a child with a disability has made on our neurotypical children and how we have each noticed a higher level of independence and self-advocacy skills.
Show resources
Holly shares her experience using combination door knobs in her home which increases safety and provides a means for neurotypical siblings to have their own secure space. https://www.amazon.com/Signstek-Keyless-Digital-Electronic-Security/dp/B00KS3JC30?pd_rd_w=c3bUq&pf_rd_p=07da9b2f-52f3-4fa6-b605-4458a1e54cf1&pf_rd_r=6R7D68GAYSBMFW69TFMK&pd_rd_r=6e8a228e-37d3-478b-833f-4e7d1cf0cd97&pd_rd_wg=7uwUR&pd_rd_i=B00KS3JC30&psc=1&ref_=pd_bap_d_rp_36_i
Holly also explains the benefit of registering an ISAAC Alert (911 dispatch note linked to your home address) if you have locking interior doors and window at your home: https://theisaacfoundation.configio.com/page/programsisaacalert
Families who are interested in accessing ISAAC Foundation’s Sibling Spotlight program can find the registration link here: https://theisaacfoundation.configio.com/page/siblingspotlight
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On this very special episode of ISAAC’S Autism in the Wild Podcast we are joined by two of our favorite self-advocates, Tracey Cohen & John Lemus. Tracey is an author of three books, two about autism and one about her passion for running. We had featured Tracey in an episode earlier this year and were so excited to meet her in person when she came to Spokane to visit at the end of the summer. While Tracey was visiting we introduced her to John Lemus, a Spokane based disabilities professional who advocates for the disability community through his various positions in local and state leadership.
Please take a listen and excuse the background noise as we are recording LIVE on the stage at Pitotti Coffee as we discuss several topics regarding advocacy.
References:
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One last book that I’ve been pushing is: Divergent mind thriving in a world that wasn’t designed for you
by Jenara Nerenbeg who is a female autistic author
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In this episode of ISAAC’S Autism in the Wild we are joined again by our friend Becky Gardner of “A Life of My Own” Executive Function Coaching. Several parents have also joined us to ask her questions about executive function as it relates to their own children. Listen in and learn along with our parents, some strategies to help launch our children successfully!
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This week we are joined again by Becky Gardner, Executive Function Coach at A Life of My Own. We previously discussed finding and maintaining motivation for your loved ones with autism or other special needs (See Episode 89-Motivation)to help them set and achieve goals. In this episode we take the conversation a bit deeper and discuss the reasons they may be getting stuck and how that is not a reflection of their motivation, and more so a manifestation of their frustration. Listen in to learn strategies for determining what is holding them back from making progress and how to get “un-stuck”
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In this episode we are joined by two moms that both have young-adult children that are preparing to launch towards independence. Phara has a 23 year year old son and is currently preparing for their second-attempt at launching her son into independent living. Gerriann has an 18 year old son who is just graduating high school and will be continuing in the school system through a transition program.
We discuss with each parent the issues they are facing, the barriers to employment/living situations they are encountering, and the programs they have been utilizing to make positive progress. We also have a conversation about the needs of the parents and the importance of finding a support network and planning for the future.
If you have questions for any of our guests, please feel free to email us at hello@theisaacfoundation.org and we would be happy to get you in contact with them!
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In this episode of ISAAC’s Autism in the Wild, we are joined again by Becky Gardner, Executive Function Coach at: A Life of My Own to discuss motivation. Finding and maintaining motivation is a tricky task in a nuerotypical brain–so for our loved ones on the autism spectrum we have to really dial in to determine which means of motivation will be successful. It is a process and can be discouraging, however the benefits to finding a sustainable intrinsic motivation can be life changing.
References:
Self-Determination Theory of Motivation: Why Intrinsic Motivation Matters
Courtney E. Ackerman, MA., 2-15-2021 (Synopsis of Ryan and Deci’s work on Self-Determination Theory and Intrinsic Motivation)
Drive. By Daniel Pink (book)
Key Concepts-
– Autonomy: “Control leads to compliance; autonomy leads to engagement.” Control is by others, from outside (extrinsic motivators) – in some situations this leads to compliance but does not lead to desire. Autonomy is from within (intrinsic) – by definition it leads to a true desire to engage with the activity.
– Mastery: “One source of frustration … is the frequent mismatch between what people must do and what people can do. When what they must do exceeds their capabilities, the result is anxiety. When what they must do falls short of their capabilities, the result is boredom. But when the match is just right, the results can be glorious.”
– Purpose: “Human beings have an innate inner drive to be autonomous, self‐determined, and connected to one another. And when that drive is liberated, people achieve more and live richer lives.”
TED Talk: “The Puzzle of Motivation” By Dan Pink
Although used in a different context, the science is valid and the research applies.
Executive Functioning –
> Smarts: Are We Hardwired for Success? (Book) by Chuck Martin , Peg Dawson, Richard Guare
> Smart but Scattered: The Revolutionary “Executive Skills” Approach to Helping Kids Reach Their Potential (Book) by Peg Dawson and Richard Guare
Collaborative Problem Solving –
> Rethinking Challenging Kids: Where There’s a Skill There’s a Way, Stuart Ablon https://youtu.be/wgNpGThLl2U
> Changeable: How Collaborative Problem Solving Changes Lives at Home, at School, and at Work (Book) by J. Stuart Ablon
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About Camille with KidsCare Home Health Therapy:
Camille Farris M.S. CCC-SLP, based in Denver, Colorado
Pediatric Speech Language Pathologist with KidsCare Home Health specializing in speech, language, and feeding therapy
KidsCare has operations in Texas, Colorado, Idaho, and Oregon
References:
Employment Settings for SLPs. (n.d.). Retrieved November 13, 2020, from https://www.asha.org/students/employment-settings-for-slps
Gleason, J. B., & Bernstein, N. E. (2013). The development of language. Boston,, MA: Pearson.
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