Category: Family

#119 | Sibling Independence with guest Maria Jennings

#119 | Sibling Independence with guest Maria Jennings

On this week’s episode, Maria Jennings joins me to discuss the dynamic that having a child with a disability has made on our neurotypical children and how we have each noticed a higher level of independence and self-advocacy skills.

Show resources

Holly shares her experience using combination door knobs in her home which increases safety and provides a means for neurotypical siblings to have their own secure space. https://www.amazon.com/Signstek-Keyless-Digital-Electronic-Security/dp/B00KS3JC30?pd_rd_w=c3bUq&pf_rd_p=07da9b2f-52f3-4fa6-b605-4458a1e54cf1&pf_rd_r=6R7D68GAYSBMFW69TFMK&pd_rd_r=6e8a228e-37d3-478b-833f-4e7d1cf0cd97&pd_rd_wg=7uwUR&pd_rd_i=B00KS3JC30&psc=1&ref_=pd_bap_d_rp_36_i

Holly also explains the benefit of registering an ISAAC Alert (911 dispatch note linked to your home address) if you have locking interior doors and window at your home: https://theisaacfoundation.configio.com/page/programsisaacalert

Families who are interested in accessing ISAAC Foundation’s Sibling Spotlight program can find the registration link here: https://theisaacfoundation.configio.com/page/siblingspotlight

#115 | The Arc of Spokane

#115 | The Arc of Spokane

In this episode of ISAAC’S Autism in the Wild Holly is joined by the Executive Director of the Arc of Spokane, Sima Thorpe. Sima is here to tell us all about The Arc of Spokane and introduces us to two of her most recent hires, Jennifer and Maria. Together this group discusses the different programs available to families in our area and how we plan to work together to help meet the needs of the developmentally disabled populations in Spokane and extending into our rural areas.

The Arc of Spokane:

Questions on resources and services:

advocacy@arc-spokane.org

 

For Spokane Parent to Parent Resources:

Maria Jennings

mjennings@arc-spokane.org

509-789-8797

Facebook:  Parent to Parent of Spokane County | Facebook

 

For Pend Orielle and Stevens County Parent to Parent Resources:

Micaela Herman

mherman@arc-spokane.org

509-789-8782

Parent to Parent of Stevens and Pend Oreille Counties | Facebook

 

Sexual Abuse Prevention Training

Jim Lane

jlane@arc-spokane.org

509-789-8325

#114 Self-Advocate & Son, Caleb

#114 Self-Advocate & Son, Caleb

In this special episode of ISAAC’S Autism in the Wild, Holly is joined by her very own son, Caleb. Caleb is 13 years old and was diagnosed with autism when he was very young, in fact during this episode he reveals that he does not remember a time when he was not in therapy. Listen is as Holly discusses with Caleb; what autism means to him, what he notices in his day to day life as a child with autism, his likes/dislikes and specifically where some of them stem from, and so much more!

#113 Self-Advocate RoundTable–LIVE!

#113 Self-Advocate RoundTable–LIVE!

On this very special episode of ISAAC’S Autism in the Wild Podcast we are joined by two of our favorite self-advocates, Tracey Cohen & John Lemus.  Tracey is an author of three books, two about autism and one about her passion for running.  We had featured Tracey in an episode earlier this year and were so excited to meet her in person when she came to Spokane to visit at the end of the summer.  While Tracey was visiting we introduced her to John Lemus, a Spokane based disabilities professional who advocates for the disability community through his various positions in local and state leadership.

Please take a listen and excuse the background noise as we are recording LIVE on the stage at Pitotti Coffee  as we discuss several topics regarding advocacy.

References:

Full Spectrum Agency for Autistic Adults
Author, Autism Advocate
Episode #110 | Gender Identity & the LGBTQIA+ Community

Episode #110 | Gender Identity & the LGBTQIA+ Community

In this episode of ISAAC’S Autism in the Wild we talk to parents that all are raising both children on the spectrum and children that identify with the LGBTQIA+ community in some way.  We have seen a large number of our kiddos with autism questioning their own identity or genders as well as several of the neuro-typical siblings exploring their identities as well. We discuss this connection and determine if we feel these are attention seeking behaviors or simply valid self exploration. We also discuss the challenges of parenting these children-the process of switching pronouns/names, and dealing with the critical views of extended family or communities that are less accepting.

Episode #109 | Autism & Siblings -Tyler’s Story

Episode #109 | Autism & Siblings -Tyler’s Story

This week on ISAAC’S Autism in the Wild our host Holly is joined by another VERY special guest, her son Tyler. Tyler is 17 years old and was the only child in the family to have spent time with Isaac as they were only 11 months apart in age.

Tyler is an aggressive advocate for those with autism and other special needs. He is very close to his brother Caleb and acts as a mentor to him which, as a 17 year old young man, comes with its pros and cons 🙂 We joke, but you will hear throughout this episode, what a passionate and kind young man Tyler is.

We discuss Tyler’s early memories of Isaac, how the ISAAC Foundation has impacted him throughout the years, and the struggles that he has experienced. Take a listen, we are sure you will be inspired by some of the charismatic gems of wisdom Tyler shares in-between the curse words.

Episode #107 | Autism & Siblings-Kelly’s Story

Episode #107 | Autism & Siblings-Kelly’s Story

This week on ISAAC’S Autism in the Wild our host Holly is joined by a VERY special guest, her daughter Kelly.  Kelly is 11 years old and has been raised in an “autism house” since day one.  Her older brother Caleb (13yrs) has ASD 1 and now through Holly’s recent marriage she has gained an 18 year old step-brother, Cooper, who is more significantly impacted.

On this episode we discuss what life is like as a neuro-typical kid in a home where autism is present.  As Kelly will divulge it is not all roses and sunshine, despite that, Kelly has a very optimistic view of her life and the challenges autism presents in general.  Kelly is a very kind, empathetic young woman that is a fierce advocate for her brothers.  She discusses the issues that have arisen as a result of autism, how she has dealt with those issues, as well as what she sees in the future for herself and her brothers with autism.

Episode #106 What NOT to say to a special needs parent

Episode #106 What NOT to say to a special needs parent

In this episode we discuss the cringe-worthy compliments we have received over the years.  Sentiments like “God gives special children to special people” and “You are such a great advocate for your child” are meant to be confidence boosters, but over time can grate the nerves of a special needs parent.  So listen in and hear some of the well meaning comments that have irked our parents over the years!

Episode #104 | Housing Options for Adults

Episode #104 | Housing Options for Adults

In this episode we are joined by Desiree Kameka Galloway of The Autism Housing Network. Holly had first learned of their work as well as the Madison House Autism Foundation a few years back while attending a conference about “Life After High School.” Holly was so impressed with Desiree’s presentation and has used their site as a reference to our families for years.  The ISAAC Foundation has been receiving more and more calls from parents regarding concerns for long term living situations for their adult children in recent years so we reached out to Desiree to see if she could explain some of the housing options that exist and what the Autism Housing Network can do to help families as they determine the long term plans for their loved ones.

Contact Info:

Desiree Kameka Galloway
National Coordinator, Coalition for Community Choice
Episode 103 | Self Advocate: Sydney

Episode 103 | Self Advocate: Sydney

This week on ISAAC’S Autism in the Wild our host Holly is joined by Sydney. Sydney is a 27 year old self advocate that just relocated to Spokane from Alaska.  We cover it all in this episode: from her diagnosis as a child, to her career in Alaska, and now how she is settling in to life in Spokane. Sydney is an ambitious young woman with a strong sense of self and will be a great ambassador for self advocates in Spokane, we are happy to have met with her and look forward to collaborating with her again soon!