Tag: Autism self-advocate

Episode 98 | My Life on the Autism Spectrum, Tracey Cohen

Episode 98 | My Life on the Autism Spectrum, Tracey Cohen

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Today we are very excited to introduce our listeners to a truly inspirational self advocate, Tracey Cohen.  Tracey reached out to us to share her resources with the intent to educate and inspire individuals, families, professionals, and anyone willing to learn about Asperger syndrome/autism. She wants to share her story to prevent others from the hardships and pitfalls of her past. We asked her to be on our podcast and share her story and we are so glad to have made this connection. Listen in, and we are sure you will be just as captivated with her and her story as we are!

About Tracey:

There have been many misunderstandings in Tracey’s life. The most impactful misunderstanding was learning she was on the Autism Spectrum at the age of 39. A lifetime of feeling unheard and misunderstood suddenly had a name and a reason. Since her diagnosis Tracey has continued to study and learn about her diagnosis and how it influenced the choices that were made for her growing up.

Tracey currently helps facilitate a non-profit meetup group for adults on the spectrum, this group is based out of Michigan, however, all events are currently online so are available for anyone on the spectrum to take part in.

She has also written and published three books, all which can be purchased in print or audio/kindle.

Finally she is featured on the website: Growing Up Autistic where she shares her story, accolades, and links to her work.

To reach Tracey directly please email: tracey@growingupautistic.com

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Episode 93 | Therapy Interventions, a self advocate’s take

Episode 93 | Therapy Interventions, a self advocate’s take

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Welcome to another episode of ISAAC’s Autism in the Wild.  This week we are discussing therapy interventions.  While we have discussed many of these interventions at length in the past we have a unique viewpoint we would love to share.  Gillis Williams, aka “GW” is joining Holly again to discuss his view of the therapy interventions he received as a child. They discuss which interventions his family sought out and which were the most beneficial and enjoyable from his viewpoint.

 

Follow GW on social media at: Autism Chose Me, info@autismchoseme.com

autismchoseme.com

FB/Insta/Youtube/Twitter/TikTok @autismchoseme

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Episode 91 | Self Advocate, GW of Autism Chose Me

Episode 91 | Self Advocate, GW of Autism Chose Me

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Today we are joined by Gillis Williams or GW of “Autism Chose Me.”  GW is an incredible self- advocate for persons affected by autism spectrum disorder.  Listen in as we discuss the controversy between the “light it up blue” and “red instead” movements and discuss how both missions have impactful goals that are beneficial to the autism community.

About GW:

When I was five years old, I was diagnosed with autism. From grade school to high school issues I had included listening problems, struggles following directions in class, and repetitive behaviors such as flapping my hands and repeating random words or sentences. I also struggled making friends because kids in school didn’t understand my behaviors. Even my teachers, who tried to support me in all the ways they could, didn’t understand me either. However, with my supportive family at my side, we worked TOGETHER to get me help. They placed me in occupational and music therapies in grade school that assisted kids with disabilities, and also with hard work and dedication, I have become a successful speaker and entrepreneur, something that scientific research 15 years ago stated that hardly any autistic individual would have been able to accomplish. Most importantly, I have made friends along the way that understand me and support me. Without my family and friends for support, I would not have had any helpers throughout my life to “HELP” me overcome and accomplish! As the great Mr. Fred Rogers stated, “Look for the helpers. You will always find people who are helping.”

Social Media Advocates to look up:   @paigelayle   @reberrabon_bon @blackautisticking   @raincloud.heart   @resident_cryptid   @autistic.alex @evelyn.jeans   @lafilledani   @autienelle

Follow GW on social media at: Autism Chose Me, info@autismchoseme.com

autismchoseme.com

FB/Insta/Youtube/Twitter/TikTok @autismchoseme

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Episode 85 | Building and Maintaining Self Esteem

Episode 85 | Building and Maintaining Self Esteem

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We know that on the whole, our children on the spectrum receive many more corrections each day than a nuero-typical child. In a world of “don’t do that” and “it is better if you do it this way” it is hard to achieve a high sense of self esteem and maintain confidence in yourself.  We have discussed building self esteem in passing while recording other episodes but wanted a chance to discuss this topic as a whole.  So, we invited a panel of parents that discuss the challenges their children-on all ends of the spectrum have faced regarding growing and maintaining self esteem.

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Episode #63 | Extra-Curricular Activities

Episode #63 | Extra-Curricular Activities

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Extra-curricular activities are often an important outlet for all children to take part in during their school year.  These opportunities bring about the benefit of physical activity, social and emotional communication with peers, a sense of community and more.  But are all special needs extra curricular activities created equal?  And how do we find activities our kiddos are actually interested in participating in?  Today we discuss with a few autism parents what activities they have tried, which were successful, and which were duds!

Contact Info for some of the programs we discussed:

  • Bambino Buddy-Ball | bambinobballmom1@yahoo.com | (509) 251-2588
  • Adaptive Skiing & Snowboarding | Spokaneparks.org | mtspokane.com/specialty-programs
  • Spokane Powderhounds | (509) 999-8586 Downhill skiing and snowboarding program for individuals with special needs.
  • Adaptive Skiing: (509)714-7654 for individuals with mobiity challenges.
  • Blue Waxers | Cross Country Skiing | (509) 953-6062.
  • iCan Shine Bike Camp | icanshine.org/ican-bike-spokane-wa/ | (509) 999-9603 Contact Casey Traver: icanshine.spokane@comcast.net
  • Lilac City Warriors | Lilac City Warriors’ Facebook Page, A Youth Special Olympics’ track and field team
  • PASS Soccer | monaca.pass@gmail.com | (509) 862-8065 PASS (Player Adaptive Soccer Skills) is an organization that provides soccer to children and adults with physical and/or cognitive challenges.
  • Gonzaga Exceptional Bulldogs Hockey Team | gonzagaexceptionalbulldogs@gmail.com Any child, 5 years–High School who is Differently Abled. Sponsored by Gonzaga University. Coach Mark Derby: (509) 590-9926

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Episode #62 | Anxiety and its relationship to Executive Function (part 2)

Episode #62 | Anxiety and its relationship to Executive Function (part 2)

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There was just so much more to cover on the topic of anxiety and its relationship to Executive Function that we decided to record a part 2 to this topic.  In this episode, we dive into the 12-areas of executive function and talk about how anxiety manifests where struggles exist.

 

Becky Gardner comes to A Life of my Own with a holistic, collaborative approach created from a unique and varied background.

  • With a Master’s Degree in Occupational Therapy, which has its roots in purposeful, meaningful work to increase independence in Activities of Daily Living (ADLs), she brings a student-focus and student-driven approach to this work.

  • Having a deep Social justice / Neurodiversity core belief system brings a focus of self-determination and self-advocacy. This was further developed during work at Bellevue College’s Disability Resource Center, determining individualized college accommodations for students with disabilities so that they may have equal access to course materials.

  • Operating from a strengths-based educational model brings emphasis in student empowerment and nurturing their belief in their own self-efficacy. This was developed / enhanced while working with Sara Gardner (no relation, autistic creator of the current Neurodiversity Navigators program), and from working in and around the Autism Spectrum Navigators program at Bellevue College since its conception, Becky was the adjunct faculty for the Executive Functioning course, and co-taught other courses including Self-Advocacy.

  • Having experience working through her own disability / executive functioning deficits, and having two neurodiverse adult children, brings an understanding of the day-to-day events and efforts that go with these experiences.

  • Working with college, high school, and middle school students at varying stages on the continuum of independence, brings rich and varied experience to this work.

A Life of my Own is the natural culmination of this prior work and life experience.

Becky is excited to offer her skills and experience to a wider group of young adults to improve their understanding of what ”adulting” / independent living looks like, and to assist with increasing abilities in necessary areas leading to independence – and their feeling of A Life of my Own.

A Life of My Own

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Episode #55 | Twelve areas of Executive Function (Part 2)

Episode #55 | Twelve areas of Executive Function (Part 2)

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Becky Gardner joins us for another episode to walk us through all twelve areas of executive function and how they impact the success of our children.

As Becky shares, Executive Functions are complex, higher level of thought processes that allow a person to accomplish higher level tasks throughout their day. Everyone has them and everyone has executive functioning strengths and weaknesses. The different combinations of these make us unique and different in how we go about things.

In this podcast, we learn about all twelve executive function areas and how they impact our kids.

  • Self-Restraint
  • Working Memory
  • Emotional Control
  • Focus
  • Task Initiation
  • Planning/Prioritizing
  • Organization
  • Time Management
  • Defining and Achieving Goals
  • Flexibility
  • Observation/Metacongition
  • Stress Tolerance

Becky Gardner comes to A Life of my Own with a holistic, collaborative approach created from a unique and varied background.

  • With a Master’s Degree in Occupational Therapy, which has its roots in purposeful, meaningful work to increase independence in Activities of Daily Living (ADLs), she brings a student-focus and student-driven approach to this work.

  • Having a deep Social justice / Neurodiversity core belief system brings a focus of self-determination and self-advocacy. This was further developed during work at Bellevue College’s Disability Resource Center, determining individualized college accommodations for students with disabilities so that they may have equal access to course materials.

  • Operating from a strengths-based educational model brings emphasis in student empowerment and nurturing their belief in their own self-efficacy. This was developed / enhanced while working with Sara Gardner (no relation, autistic creator of the current Neurodiversity Navigators program), and from working in and around the Autism Spectrum Navigators program at Bellevue College since its conception, Becky was the adjunct faculty for the Executive Functioning course, and co-taught other courses including Self-Advocacy.

  • Having experience working through her own disability / executive functioning deficits, and having two neurodiverse adult children, brings an understanding of the day-to-day events and efforts that go with these experiences.

  • Working with college, high school, and middle school students at varying stages on the continuum of independence, brings rich and varied experience to this work.

A Life of my Own is the natural culmination of this prior work and life experience.

Becky is excited to offer her skills and experience to a wider group of young adults to improve their understanding of what ”adulting” / independent living looks like, and to assist with increasing abilities in necessary areas leading to independence – and their feeling of A Life of my Own.

If you believe your loved one would benefit from the expertise of Becky Gardner, she can be reached at

A Life of Your Own

 

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Episode #54 | Executive Function: A Life of My Own

Episode #54 | Executive Function: A Life of My Own

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In this podcast, executive function extraordinaire, Becky Gardner, joins us to talk about the challenges that executive function deficits can pose for our children; and I don’t just mean our kids with autism. If you have felt concern about any of your kids’ ability to focus, initiate tasks, plan and prioritize tasks, manage time, define and achieve goals, then you DEFINITELY need to listen to this podcast.  Executive function challenges affects just as many neuro-typical kids as those with special needs.

Becky shares about her professional background as an Occupational Therapist and how this lead her down the road to becoming an executive function coach.

Interested in learning more about Executive Function and how Becky can help your child use their strengths to over come their challenging areas of executive function?

Becky Gardner comes to A Life of my Own with a holistic, collaborative approach created from a unique and varied background.

  • With a Master’s Degree in Occupational Therapy, which has its roots in purposeful, meaningful work to increase independence in Activities of Daily Living (ADLs), she brings a student-focus and student-driven approach to this work.

  • Having a deep Social justice / Neurodiversity core belief system brings a focus of self-determination and self-advocacy. This was further developed during work at Bellevue College’s Disability Resource Center, determining individualized college accommodations for students with disabilities so that they may have equal access to course materials.

  • Operating from a strengths-based educational model brings emphasis in student empowerment and nurturing their belief in their own self-efficacy. This was developed / enhanced while working with Sara Gardner (no relation, autistic creator of the current Neurodiversity Navigators program), and from working in and around the Autism Spectrum Navigators program at Bellevue College since its conception, Becky was the adjunct faculty for the Executive Functioning course, and co-taught other courses including Self-Advocacy.

  • Having experience working through her own disability / executive functioning deficits, and having two neurodiverse adult children, brings an understanding of the day-to-day events and efforts that go with these experiences.

  • Working with college, high school, and middle school students at varying stages on the continuum of independence, brings rich and varied experience to this work.

A Life of my Own is the natural culmination of this prior work and life experience.

Becky is excited to offer her skills and experience to a wider group of young adults to improve their understanding of what ”adulting” / independent living looks like, and to assist with increasing abilities in necessary areas leading to independence – and their feeling of A Life of my Own.

A Life of My Own

 

 

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Episode #50 | Autism Language Debate

Episode #50 | Autism Language Debate

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In this podcast, we discuss the language and symbols most commonly used within our autism community and how it relates to our loved ones touched by autism.  We discuss why parents choose certain language and how it can help and, at times, hinder our ability to effectively communicate information about our loved ones; specifically when engaging in discussions with individuals in our community who may have less knowledge of the disorder.

We discuss:

  • Autistic vs. Person with autism (AKA people first language)
  • Heavily touched vs. low functioning
  • High functioning vs. Aspergers
  • Autistic vs. Neuro-Diverse
  • Touched by autism vs. impacted by autism
  • Disabled vs. Differently-Abled

 

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