Tag: Emotional Health

#128 | Self-Advocate Laine Anderson: Williams Syndrome Acceptance Month

#128 | Self-Advocate Laine Anderson: Williams Syndrome Acceptance Month

May is Williams Syndrome Acceptance Month. Joining me for this episode of Isaac’s Autism in the Wild podcast is self-advocate Laine Anderson who shares with me her journey as a young woman living with Williams Syndrome. We chatted about her early years along with some of the medical  challenges associated with Williams Syndrome.

Show Notes:

https://williams-syndrome.org/

#119 | Sibling Independence with guest Maria Jennings

#119 | Sibling Independence with guest Maria Jennings

On this week’s episode, Maria Jennings joins me to discuss the dynamic that having a child with a disability has made on our neurotypical children and how we have each noticed a higher level of independence and self-advocacy skills.

Show resources

Holly shares her experience using combination door knobs in her home which increases safety and provides a means for neurotypical siblings to have their own secure space. https://www.amazon.com/Signstek-Keyless-Digital-Electronic-Security/dp/B00KS3JC30?pd_rd_w=c3bUq&pf_rd_p=07da9b2f-52f3-4fa6-b605-4458a1e54cf1&pf_rd_r=6R7D68GAYSBMFW69TFMK&pd_rd_r=6e8a228e-37d3-478b-833f-4e7d1cf0cd97&pd_rd_wg=7uwUR&pd_rd_i=B00KS3JC30&psc=1&ref_=pd_bap_d_rp_36_i

Holly also explains the benefit of registering an ISAAC Alert (911 dispatch note linked to your home address) if you have locking interior doors and window at your home: https://theisaacfoundation.configio.com/page/programsisaacalert

Families who are interested in accessing ISAAC Foundation’s Sibling Spotlight program can find the registration link here: https://theisaacfoundation.configio.com/page/siblingspotlight

Episode #110 | Gender Identity & the LGBTQIA+ Community

Episode #110 | Gender Identity & the LGBTQIA+ Community

In this episode of ISAAC’S Autism in the Wild we talk to parents that all are raising both children on the spectrum and children that identify with the LGBTQIA+ community in some way.  We have seen a large number of our kiddos with autism questioning their own identity or genders as well as several of the neuro-typical siblings exploring their identities as well. We discuss this connection and determine if we feel these are attention seeking behaviors or simply valid self exploration. We also discuss the challenges of parenting these children-the process of switching pronouns/names, and dealing with the critical views of extended family or communities that are less accepting.

Episode #109 | Autism & Siblings -Tyler’s Story

Episode #109 | Autism & Siblings -Tyler’s Story

This week on ISAAC’S Autism in the Wild our host Holly is joined by another VERY special guest, her son Tyler. Tyler is 17 years old and was the only child in the family to have spent time with Isaac as they were only 11 months apart in age.

Tyler is an aggressive advocate for those with autism and other special needs. He is very close to his brother Caleb and acts as a mentor to him which, as a 17 year old young man, comes with its pros and cons 🙂 We joke, but you will hear throughout this episode, what a passionate and kind young man Tyler is.

We discuss Tyler’s early memories of Isaac, how the ISAAC Foundation has impacted him throughout the years, and the struggles that he has experienced. Take a listen, we are sure you will be inspired by some of the charismatic gems of wisdom Tyler shares in-between the curse words.

Episode #108 | The ABA Debate with Self-Advocate John Lemus

Episode #108 | The ABA Debate with Self-Advocate John Lemus

In this episode our host, Holly is joined by Self-Advocate John Lemus. John is an experienced Outreach Coordinator and has worked extensively in the non-profit industry, specifically in disability relations. John is a strong community and social services professional and a 2015 Graduate of Leadership Spokane. We are excited to have him, and his friend/ally/advocate, Katrina Boik on our show today to discuss the highly debated topic of ABA Therapy.
Over the past few years stories of abusive practices in ABA therapies have gained attention on social media, and as a result, a percentage of the Self-Advocate community are now fierce opponents to this and other therapies/interventions used to aid in behavior modification in children with autism and related conditions. Admittedly our panel has fallen on different sides of this argument over years as they have deciphered through stories/articles, learned about the current delivery of therapy methods, and determined if their sources were based on fact or misinformation.
Listen in to hear the evolution of beliefs for John as a self-advocate; Katrina as an advocate and disabilities professional, and Holly as the parent to children on alternate sides of the spectrum as well as a disabilities professional.
References from John:
These two books are responsible for changing me from a bulldog advocate to a  more compassionate and empathic person who can see things from multiple viewpoints not just within my work but in life.
I think your wrong but I’m listening (a guide to Grace-Filled Political Conversations)
by Sarah Steward Holland and Beth Silvers
These amazing ladies also run https://www.pantsuitpoliticsshow.com/
I believe I mentioned 12 steps to a compassionate life
by Karen Armstrong.

One last book that I’ve been pushing is: Divergent mind thriving in a world that wasn’t designed for you

by Jenara Nerenbeg who is a female autistic author

(this book is currently $1.99 on iBooks)
A really great blog post from my amazingly incredible BFF Katrina Boik https://soarbehaviorwa.com/inclusive-language/
Lastly I’ve been sharing this video from Simon Sinek with some autistics that talks about stop championing blunt honesty. It talks about how to adapt  and how to still be honest without being an asshole https://fb.watch/7udTXgeBNU/
Episode #106 What NOT to say to a special needs parent

Episode #106 What NOT to say to a special needs parent

In this episode we discuss the cringe-worthy compliments we have received over the years.  Sentiments like “God gives special children to special people” and “You are such a great advocate for your child” are meant to be confidence boosters, but over time can grate the nerves of a special needs parent.  So listen in and hear some of the well meaning comments that have irked our parents over the years!

100th Episode | PART TWO

100th Episode | PART TWO

Welcome back to Part Two of our 100th episode special recording! We have a great group of parents together–in person–for the first time since before the pandemic.  In this section of the recording we discuss our favorite podcast episodes and discuss how podcasting has affected each of them.

If you are interested in joining us on a podcast and telling your story please complete this form and we will be in contact to get you scheduled so you can meet the network of amazing families we work with!

 

Episode 93 | Therapy Interventions, a self advocate’s take

Episode 93 | Therapy Interventions, a self advocate’s take

Welcome to another episode of ISAAC’s Autism in the Wild.  This week we are discussing therapy interventions.  While we have discussed many of these interventions at length in the past we have a unique viewpoint we would love to share.  Gillis Williams, aka “GW” is joining Holly again to discuss his view of the therapy interventions he received as a child. They discuss which interventions his family sought out and which were the most beneficial and enjoyable from his viewpoint.

 

Follow GW on social media at: Autism Chose Me, info@autismchoseme.com

autismchoseme.com

FB/Insta/Youtube/Twitter/TikTok @autismchoseme

Episode 85 | Building and Maintaining Self Esteem

Episode 85 | Building and Maintaining Self Esteem

We know that on the whole, our children on the spectrum receive many more corrections each day than a nuero-typical child. In a world of “don’t do that” and “it is better if you do it this way” it is hard to achieve a high sense of self esteem and maintain confidence in yourself.  We have discussed building self esteem in passing while recording other episodes but wanted a chance to discuss this topic as a whole.  So, we invited a panel of parents that discuss the challenges their children-on all ends of the spectrum have faced regarding growing and maintaining self esteem.

Episode 79 | Self Care During a Pandemic

Episode 79 | Self Care During a Pandemic

This week ISAAC’S Autism in the Wild checks in with a few parents to see how they are keeping sane during these insane times.  We are now over 9 months into the COVID-19 pandemic and discuss how our own self care looks as we have settled into the new normal.  We discuss alone time, sleep, hobbies, social media and more. We also explore how our thoughts on self care have changed as we’ve adjusted to the decline in social interaction.